Thank you in advance...My Mom has been on two separate prednisone regimens within the past four to four and half months. She was dx'ed w/ Stage 3A adeno..ALK+ in 08/2012. She had an ULL, and then concurrent chemo and radiation last fall thru early December. It has been a long road just like many, many people unfortunately have had to endure... she is steadily improving and just had on 08/09/13 a clear MRI of the brain and just this past Monday was told her CT scan is clean, clear and free( I sincerely hope everyone has and or will get this status and remain as such) ...the issue is.. she just stopped her second predisone regimen on Monday with her last dose of (10) mg. She was on (40) mg for two weeks, then (30) mg for two weeks, (20) mg for two weeks and then (10) mg for three weeks. She was taking it for a bad case of radiation pneumonitis BUT for two days now she has developed a very bad headache for which she has had to go to bed...it is fairly unusal for her. Is this normal or something we should watch very closely or even call her care team? Please let us know and thank you very much! Dwight
Sorry..another question/possible issue...I did do a search though before asking. - 1259206
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Reply # - September 11, 2013, 07:47 PM
Reply To: Sorry..another question/possible issue…I did do a
moving too quickly off prednisone can cause this symptom. A call to her care team can help clear the nasty headaches no matter from where they come. As you've seen clearing the system completely of oral steroids can be a long process and need to give and take the dose for months.
However..........How absolutely wonderful to hear your mom is "clean, clear and free" of cancer!
I hope the pneumonitis has healed and hope she gets the headaches under control.
Janine
Reply # - September 11, 2013, 09:39 PM
Reply To: Sorry..another question/possible issue…I did do a
Congratulations on that great result. Coming off of steroids can certainly be associated with headaches, but it's appropriate to call the care team any time a patient is experiencing concerning side effects. We are never in a position to say that a symptom is nothing to worry about and that it's incorrect to seek the advice of the care team directly involved in a patient's care.
Good luck!
-Dr. West