I was diagnosed with SVC syndrome last summer at Ohio State University Wexner Center. They put me on itraconozole as they chose not to biopsy the enlarged lymph node causing the problem. I couldn't afford the $540 a month for the drug and it wasn't helping anyway.
In 2015 I was exposed to Black Mold- had two botched biopsies and two trachial bronchoscopies to cauterize the fungal mass in my right lung that was caused by the mold exposure. I can't find an attorney to sue my slumlord to cover the $160,000 in medical costs.
I now have developed Angina Pectoris in my left chest.
Everyone says I don't have cancer, but I feel like I'm gonna die at any moment. I can't walk more than 200 feet
without being short of breath. My right chest hurts from the SVC, my left shoulder hurts when I exercise any amount. I get short of breath, tingling down my left arm and hand, and then it goes away.
I'm only 58 years old. I don't want pity, I want answers. None of my doctors know how this happened and they
are afraid to operate on the SVC because the last three patients at OSU that were operated on with this non-cancerous SVC died from complications.
I'm between jobs, no insurance, and stressed.
Any answers out there?