Post Date | Body | Has new content | Topic | Forum | Name |
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Hi Grace Readers, I want to share a newly published post written by one of our board members, Nancy Sladicka. It covers most of the most important basic tips and tricks needed to become your own advocate in cancer care.
Maybe the most important reason to have this info is because medical oncologists, even those who specialize, can not keep up with fast moving changes in every facet of the care and treatment of their patients.
You Have Been Diagnosed - What Next? can help you become the advocate todays healthcare user should become.
As always, don't hesitate to ask questions and share experiences here with us. Your experiences and questions hold much more insight to readers than you may know. Take care all! Janine |
Be Your Own Best Advocate | Finance and Insurance | JanineT GRACE … | ||
There is not a ton of info available for Cholangiocarcinoma, so seeing information come up with new developments is always exciting. In this video, Rachna Shroff MD, chief of Gastrointestinal Medical Oncology at the University of Arizona Cancer Center in Tucson, AZ, highlights novel therapies for the treatment of cholangiocarcinoma and opportunities for utilization of precision oncology and the development of targeted therapies for genetic alterations in patients dealing with a diagnosis of cholangiocarcinoma. Let us know what you think.
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Developments in Novel and Targeted Therapies for Biliary Tract Cancers | General Gall Bladder and Bile Duct Cancers | dbrock | ||
How easy or difficult do you find communicating with your care team? I came across this discussion by Dr. West, Better Communication Leads to Better Outcomes for Cancer Patients. I would say if you find yourself in a situation where your "communication" isn't taken as a serious piece of your cancer management remind your onc of this study...have the study especially the conclusion bookmarked or printed out to share. More about the specifics of the trial presentation at ASCO would probably be an even better example to share and show how important the oncology community takes this info. Such an important piece of self-advocacy! Take care, Janine |
Better Communication Leads to Better Outcomes for Cancer Patients | General Discussion! | JanineT GRACE … | ||
Sex is almost always a neglected subject in cancer care. I'm so glad and proud of our staff that we have this excellent article in both Spanish and English. Wishing all well, Janine |
Sexual Health During Cancer Treatment--- La Salud Sexual Durante el Tratamiento del Cáncer | General Discussion! | JanineT GRACE … | ||
If you're like me finding specific info isn't always straightforward online. Denise has written a post on the subject here. I hope this is helpful :) |
Navigating GRACE's Video Series | General Discussion! | JanineT GRACE … | ||
The webinar has ended but you can watch this recording on-demand Here. |
Watch On-Demand 2022 Terapias Dirigidas en Español Foro de Pacientes | General NSCLC | JanineT GRACE … | ||
Our Targeted Therapies Forum was Saturday 7/16/2022. The forum was/is packed full of excellent, understandable, and useful information from our faculty of lung cancer specialists and Terri Conneran Founder of KRAS Kickers, lung cancer survivor, and patient advocate. Terri added a very important dimension to the day (she's one of us, a layperson who has a most personal stake in cancer treatment and patient advocacy).
You can watch it on-demand. NOTE: you need to scroll PAST, "Play Welcome Video" and "Test Your Connection" down to the videos in orange boxes at "Morning Session", "Breakout Sessions", and "Afternoon Session" Here is the Agenda and Faculty Bios |
Watch Videos of 7/16/22 Targeted Therapies Live Forum | General NSCLC | JanineT GRACE … | ||
In order to help prepare as many people as possible to be educated members of their own cancer care team, Grace is having its annual Targeted Therapies Forum live...online. In English on July 16, 2022, and in Spanish on July 30, 2022. Top oncologists in their field will meet online to discuss present standards of care and clinical trials. There will be large and small group discussions and Q and A. Check in regularly as we get the schedule set. |
Live, Virtual and Free Targeted Therapies Forum July 2022 | General NSCLC | JanineT GRACE … | ||
Hi all -- share your cancer journey here and connect with others. Cancer.gov has a good general description of Cholangiocarcinoma. This rare disease has support information and programs that can be found at cholangiocarcinoma.org. Our Clinical Trials page, https://cancergrace.org/find-clinical-trials, is a helpful place to search for clinical trials for all cancer types.
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Share your story in the forums | General Gall Bladder and Bile Duct Cancers | dbrock | ||
I've started this thread for a new member I've been messaging with and we wanted to bring the conversation to the forums. Don was very sick for a while and the tumor left lasting physical problems but chemo and radiation cured him. He like everyone with nsclc had a lot of individual issues that make comparison difficult (it's why many oncologists look at each case as an individual type of cancer). But the destruction the tumor caused in his ribs and brachial plexus is likely similar. Your father in law with an abdominal aortic aneurysm may benefit from consulting with a vascular or cardiac specialist to help guide treatment options such as possible chemotherapy after radiation. Chemo with or after radiation adds a few percentage points to the cure rate. Has radiation helped with his arm and shoulder pain and what has his doctors said about systemic (chemo, immuno) options in consideration to AAA? All the best, |
Dealing with a Pancoast Tumor Diagnosis | Locally Advanced NSCLC | JanineT GRACE … |