Post Date | Body | Has new content | Topic | Forum | Name |
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The Targeted Therapies Patient Forum from CancerGrace.org is finally here and FREE to anyone. Originally scheduled for earlier this year our forum is now going to be held live online this Saturday, September 12, 2020.
There’s no better way to get the most up to date information about research and real-life clinical practices than joining a group of professionals, patients, and caregivers for a day of lectures, panel discussions, and question and answer sessions.
You’ve heard the saying 2 heads are better than one? That goes doubly when you get a group of lung cancer specialists and researchers together. I’ve been a member of Grace for over 10 years and have learned so many invaluable lessons from these types of group discussions. This includes a variety of perspectives and detail only group discussions provide. You’ll have ample opportunity to ask questions. If you don’t already know, I think you’ll be heartened to see the genuine excitement from our faculty about new treatments and educating us so we can be players in the decision-making process.
If you or someone you care about has NSCLC with a targetable mutation you won’t want to miss this forum.
Here is the Agenda for Saturday, Faculty information, and Register here...See you there! |
9/12/2020 online Targeted Therapies Patient Forum | Locally Advanced NSCLC | JanineT GRACE … | ||
The Targeted Therapies Patient Forum from CancerGrace.org is finally here and FREE to anyone. Originally scheduled for earlier this year our forum is now going to be held live online this Saturday, September 12, 2020.
There’s no better way to get the most up to date information about research and real-life clinical practices than joining a group of professionals, patients, and caregivers for a day of lectures, panel discussions, and question and answer sessions.
You’ve heard the saying 2 heads are better than one? That goes doubly when you get a group of lung cancer specialists and researchers together. I’ve been a member of Grace for over 10 years and have learned so many invaluable lessons from these types of group discussions. This includes a variety of perspectives and detail only group discussions provide. You’ll have ample opportunity to ask questions. If you don’t already know, I think you’ll be heartened to see the genuine excitement from our faculty about new treatments and educating us so we can be players in the decision-making process.
If you or someone you care about has NSCLC with a targetable mutation you won’t want to miss this forum.
Here is the Agenda for Saturday, Faculty information, and Register here...See you there! |
9/12/2020 online Targeted Therapies Patient Forum | General NSCLC | JanineT GRACE … | ||
Who couldn't use good news? From the New England Journal of Medicine, "Conclusions Selpercatinib had durable efficacy, including intracranial activity, with mainly low-grade toxic effects in patients with RET fusion–positive NSCLC who had previously received platinum-based chemotherapy and those who were previously untreated. (Funded by Loxo Oncology and others; LIBRETTO-001 ClinicalTrials.gov number, NCT03157128. opens in new tab.)"
We're always proud of our faculty and humbled that they give valuable time educating the general public because they believe we are important in the decision-making process. The study authors include Grace faculty, Dr. Jared Weiss, Dr. Melissa Johnson, Dr. Nathan Pennell and Dr. Karen Reckamp; as well as several others who have contributed to our library of articles and videos.
Janine |
Selpercatinib in RET Fusion, Efficacy Includes Intracranial Activity | Stage IV NSCLC | JanineT GRACE … | ||
Nitesh Behera
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PET scan-Infection or Cancer? | General Discussion! | JanineT GRACE … | ||
Over the past several years, one of the most active fields of research in the treatment of advanced lung cancer has been that of Targeted Therapies. Each year we see the discovery of new genetic targets and the development of new medications to target them. It's a rapidly changing landscape and GRACE is offering an opportunity to become current with the latest research and practice at our Targeted Therapies Patient Forum. GRACE has assembled a knowledgeable faculty of experts who will discuss a variety of breaking topics. You can read about the forum here I've attended a previous forum, and the opportunity to learn from and interact with our expert faculty is priceless. The event will be held on April 6, 2019 in Philadelphia, PA and can also be seen on Facebook Live. It's a free event, but space is limited so register now here. Hope to see you there! Jim C Forum Moderator
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Register now - 2019 Targeted Therapies Live Patient Forum | General Lung/Thoracic Cancer | Jim C GRACE Co… | ||
Ketki Patel, a Patient Financial Advocate in Seattle recently offered suggestions and helpful information for financial navigation during your cancer journey. If you haven't read the article, I highly recommend it! It is full of great information. You can read it here: https://cancergrace.org/post/how-combat-financial-toxicity-during-your-cancer-treatment.If you have questions for Ketki, please join this conversation! Keep in mind that this is a public forum and others can read your info. Please don't post personal information. If you would like to contact her privately, please use the Personal Messaging option through our GRACE forums (click 'send author a message' below), her username is: ketki.Can you share with our community knowledge you have gained through your diagnosis and treatment? What do you think about the information Ketki has shared? We want to hear from you! |
How to Combat Financial Toxicity During Your Cancer Treatment - what do YOU think? | Finance and Insurance | dbrock | ||
On Saturday, November 10, 2018, GRACE partnered with Swedish Cancer Institute to present a live and webcast discussion on Local Therapies for Metastatic Lung Cancer. We are pleased to be able to share with you the videos from the live webcast, available now. View the videos here!Drs. Jack West, Vivek Mehta, Puneeth Iyengar, and Eric Vallieres discussed the following topics: ~Newer Technologies in Radiation ~Novel Indications for Local Therapy in Advanced NSCLC ~The Growing Potential Utility of Surgery in Advanced NSCLC ~Systemic Therapies for Advanced NSCLC ~Panel Discussion and Q&A We invite your questions and comments - feel free to post here in our community forum!
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Videos now posted! OncTalk 2018 - Local Therapies for Metastatic Lung Cancer - Who, What, Why, When and How? | General Lung/Thoracic Cancer | dbrock | ||
Hi All - I was approached by a WhatNext Group partnered with Rare Patient Voice, with the opportunity to participate in a study specifically for Non-Small Cell Lung Cancer patients and caregivers. I am neither at this time (though I was in the past), and so declined their offer. I did, however, tell them I would pass on the information to our community through the forums. If you are interested in participating, please sign up with WhatNext (www.whatnext.com), or email Ingrid Kaugars at ingrid@whatnext.com. The study, if it is a fit for you, offers $125.00 for what they say is a 75-minute process. You must contact them for an individual unique link. :)
Below are some of the details, to help you decide if you want to participate.
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Non-Small Cell Lung Cancer Patients and Caregivers -- opportunity to participate in a study for 'Rare Patient Voice' | General Lung/Thoracic Cancer | dbrock | ||
I've lifted this directly from Simon because Simon Always Said it best. "We are just ordinary people. At the same time, we are extraordinary, because we are people. It's enough to think of how extraordinary this forum is, how inspired, how important it has been to people like you and me, because someone thought of it, and it became so, and here we are, otherwise alone, isolated, without the shared feeling that gives us strength to deal with what we must face. We are afraid. We fear pain, suffering, grief, loss. We are not heroes. Yet together, we have more strength than we might. We are family" Today is Giving Tuesday. Because Dr. West believed we as laypeople could take in the difficult concepts of cancer treatment and use it to affect change in our or our loved one's cancer treatment I work with Grace. I'm honored to be a moderator on the forums that helped me so much when my husband went through lung cancer treatment. I hope you can and will give. https://cancergrace.org/donate All the best, Janine |
Simon Said | General Discussion! | JanineT GRACE … | ||
Hi Grace Members, Grace is happy to present in partnership with the Swedish Cancer Institute " Local Therapies for Metastatic Lung Cancer Who, What, Why, When and How?" this Saturday, November 10, 2018 | 10:00 am– 1:00 pm Pacific time. This seminar will be available at no charge in person and as a live webinar. More information here, https://cancergrace.org/post/join-grace-live-seattle-november-10-2018-local-therapies-metastatic-lung-cancer If you think this info would be helpful I hope you can join us. All best, Janine
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Local Therapies for Metastatic Lung Cancer Who, What, Why, When and How? | Stage IV NSCLC | JanineT GRACE … |