Good Morning all,
Just popping in with an update. We finished chemo, I round short in April. The side effects were debilitating to me, although I kept working, and pushing through. I have been seeing a Neurologist for the neuropathy in my hands and feet, trying everything under the sun to help me get through. We started with neurontin, moved on to amitriptilyn, and a cream from TPS to help. I could not take the ami, because I could not dedicate a full 12 hrs sleep with work and home hours. My latest visit, he had decided to take me out of work and place me on temporary disability for 6 months. Although tomorrow will make a week, I am already losing my mind! I very much enjoyed being back at it, and the house can only stay so clean now!
My hands seem to be improving somewhat, and I am atleast not having the case of the "dropsies" as much. My feet on the other hand....they still cause considerable amounts of pain. Being on them for more than a few hours is not in the cards, unless I want to torture myself. During this adventure, I have seemed to gain about 30 lbs or so that I would LOVE to drop. I blame it on my "I am going to eat what I want, when I can, because I may not be able to later" attitude during treatment. When I was feeling well enough, I ATE
I had a follow up CT not long ago, and at the same time was lobbying to have my port removed. The surgeon refused, as on the scan was a 3mm of something, unknown at this time. So we had a PET and it showed 1.9 ? And it was inconclusive. So here we are waiting until October for a repeat scan to see if there has been any changes. With my KRAS mutation, and the "moderately to poorly differentiated" classifications on my biopsy report, it makes me personally nervous. Should I be? Has anyone else had this diagnosis or similar? I want to hold out for NED of course, but who of us whom have faced this demon, can be continuously hopeful for the best? I try as hard as I can to be, but somedays, the negative wins the game