It is with a torn heart that I have to tell you all that Vicente was diagnosed with lepto today. The radiation on his spine last July did not work, and his spine in full of leptomeningeal tumors. He is going to have further radiation on the new tumors on his spine, then do pulsed Tarceva at 1500 mg a week.
His brain MRI and Ct chest/pelvis were clean.
So, my question is, and I realize that one can only speculate, what happens when a person has lepto in his spine, but nothing showing up anywhere else? Although with his nausea, I suspect there is brain involvement that isn't showing up on the scan. Will he have a catastrophic spine event, or will he drift into coma like regular lepto victims? I didn't want to ask his doctor such a horrific question in front of him. I am so terrified of watching him suffer any more than he already is.
Blessings to all,