JanineT GRACE Community Outreach
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GRACE Community Outreach Team

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The National Comprehensive Cancer Network (NCCN) is updating its NCCN Guidelines for Patients®, and we’re honored to help by gathering real stories and words of encouragement from patients and caregivers. These quotes will be shared anonymously and will help bring hope and comfort to others navigating their own cancer journeys.

In the coming months, NCCN will be updating patient guides for the following cancers:

  • Acute Myeloid Leukemia
  • Non-Small Cell Lung Cancer
  • Lung Cancer Screening
  • Chronic Myeloid Leukemia
  • Prostate Cancer
  • Immunotherapy Side Effects – Checkpoint Inhibitors
  • Uterine Cancer
  • Melanoma

Your experiences—whether big or small—can make a real difference. By sharing a few words of encouragement or personal experience, you can help others feel seen, supported, and less alone.

Here are a few examples of quotes that have been included in past patient guides:

“When I first discovered the small hard pebble under the skin of my chest wall, I felt sort of silly asking for so much testing for such a tiny bump. But, nearly 10 years later, I realize that this changed my life and may be the reason why I am still here today.”

“The key to managing fear is in making informed decisions. Stay positive, make a plan for yourself, and go forward one step at a time.”

“For weeks my bra had been feeling uncomfortably tight. I tried to ignore it but then felt sharp, shooting pains and the skin looked ‘funny.’ It took multiple office visits and finally to a surgeon to learn I had inflammatory breast cancer (IBC). I'm a nurse and didn't know you could have breast cancer without a lump.”

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.
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