I'm posting regarding my Sister In Law illness... Long story short> NSCLC IV with mets to spine, brain, adrenal gland and lymph nodes. She underwent Gamma Knife back in Sep/Oct 2013 (she had two lesions) then 6 carbo/alimta rounds and started alimta maintenance. 6 month after dx PET scan showed activity only in 1 lymph node (everything else resolved) and it was recommended rad treatment to get rid of cancer cells in the lymph nodes.
She is finishing her 30 Rad Treatments and just learned that one of her two brain mets has new growth. The rad onc is recommending WBR now. FYI - while getting the rad treat, they started her on carbo/taxol as the onc said it potentiates the rad treat.
The new growth (from what I understood) has grown from the treated met.
Everything seemed to be working so well... she responded to chemo and they wanted to do rad to just get rid of that tiny spot ... I was really hopefull... and now WBR... whit all that it means...
My questions, I guess, are> it is ok to have WBR as her only option now? Can it be that stopping the alimta made the brain mets to re-grow? cant the do GK again?
Are there long term survivors out there that underwent WBR after progression from GK?
Thanks so much!