seesken
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Posts:5
Hi
We are travelling on 20th December to 7th January and just in case we have a problem it would b comforting to know where to go.
I am currently on 75mg per day (5 tabs) LDK378
Started 10th sep and all good til liver enzymes elevated on 28th October.... Came off tabs for 10 days but back n.on full dose then.
Have had trouble with diarea and cramps.... Great in mornings but fade in afternoon.
I look forward to any advice.
Congratulations in your amazing work. We got so much from the Boston conference and I got to meet so many Heroes. .It was a dream to meet my hero Linnea Duff,who is s huge inspiration.
Best wishes
Simone Kenny
Dublin
Ireland
Forums
Reply # - December 1, 2014, 02:51 PM
The link below list four
The link below list four places that are having or have had a trial comparison of LDK378 chemo, so you should be able to find someone familiar with LDK. Beneath that are the locations.
https://clinicaltrials.gov/ct2/show/study/NCT01828112?term=LDK378&rank=…
United States, Florida
Cancer Specialists of North Florida
Jacksonville, Florida, United States, 32256
Contact: Carol Starr 904-538-3667 carol.starr@csnf.us
Principal Investigator: Safeer Ashraf
University of Miami SC
Miami, Florida, United States, 33136
Contact: Lori Kronish 305-243-4624 lkronish@med.miami.edu
Principal Investigator: Israel Wiznitzer
Florida Cancer Institute SC
New Port Richey, Florida, United States, 34655
Contact: Jane Crofton 407-303-2091 Jane.Crofton@flhosp.org
Principal Investigator: Tarek Mekhail
Memorial Cancer Institute Dept of Oncology
Pembroke Pines, Florida, United States, 33028
Contact: Janika San Roman 954-844-9917 jsanroman@mhs.net
Principal Investigator: Luis E. Raez