I'm completely confused as to how the new forums are organized. I still prefer the old "Clinical Trials" subfolder, which then contained the various trial discussions (the old, old Grace, or Grace v. 3, if this is 4.5).
The previous afatinib-cetuximab thread is here.
Just wanted to say - side effects were getting severe (paronychia on all toes and 3 fingers, non-stop scalp, eye, and nose crustiness; bit of nausea and headaches) so I "cried Uncle" and got a treatment break from 7/3 to 7/18, with plans to resume at the same dose (BI said I could!). After 6 days off the drugs, my cough has increased and so has bone pain, so although I'm supposed to wait to re-start, I'm resuming afatinib (40mg) today and can go every other day if I prefer. Dr. Camidge says I'll probably resume at dose reduction on 7/18 but I'm skeptical as to the efficacy (remember what happened with Ann, aka Pedalon). I'll probably request full dose but he's the doc!
I'm still hangin in, pretty much bald and tire easily but able to function a bit. Will probably have brain MRI and PET at month's end so we'll see how it goes.
Haven't heard from Jinz in a while - how is your Mom? Jing, I hope you're coping alright and have come up with a plan for tackling the new hot spots. I'm with you, hand-wringing, nail-biting and all.