Back on the field - 1288652

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scohn
Back on the field - 1288652

I will likely post an update on how POSSIBLA is working (the name my wife and I use for the clinical trial drug - see former post) in a couple of weeks, once the next CT scan is done. But, in the meantime, I wanted to say that today marks a good moment. My wife has been an AYSO soccer referee for a number of years (Boys/Girls 7-10 year old games), doing one or two games a week. However, ever since the cancer diagnosis about a year and a half ago, she has not been a referee at all, first due to the carbo/alimta treatments (which lowered the red blood cells and reduced her stamina considerably) and then the non-responsive OPDIVO treatments, after which she had some side effects and her persistent cough returned, and then all the working out of the clinical trial initial treatments. The POSSIBLA treatments however, while having some side effects (such as the hair, and some neuropathy pain and numbness at times) do not seem to affect the blood cells at all, so her energy levels have been great. So, today, after a year and a half, she is back to refereeing an AYSO game again this afternoon (and this is after the two of us went kayaking for about an hour this morning).

So, a milestone returned to, and a hope that the CT scan in a couple of weeks continues to show a reduction in the lung tumor and the liver metastases. One day, one step forward, at a time.

JimC
Hi scohn,

Hi scohn,

What terrific news! Thank you for the update. One of the best ways to judge the success of a treatment regimen is how a patient is feeling, and it sounds as though your wife is doing just great. Enjoy her renewed energy, and I hope that the upcoming scan shows continued efficacy of the trial drug.

It's always so good to get some positive news, so thanks again for sharing it with us.

JimC
Forum moderator

<p>I began visiting GRACE in July, 2008 when my wife Liz was diagnosed with lung cancer, and became a forum moderator in January, 2010. My beloved wife of 30 years passed away Nov. 4, 2011 after battling stage IV lung cancer for 3 years and 4 months</p>