My daughter, a breast cancer survivor had a Pet Scan a few days ago and we are waiting to speak to the doctor about the results but in the meantime we had concerns.
The Pet Scan/CT showed progression to her bones, but she has had a major flare of rheumatoid arthritis since she completed radiation in January 2014. She has refused to take any treatment for her flare and has been in pain in her shoulders, arms and hands. This week she finally went in for RA treatment and was given predisone for the inflammation. The RA doctor touched one of the areas they said was cancer and said that he didn't feel it was a cancer issue but an RA issue.
A month ago she started having pain in her chest and went to the doctor who diagnosed her with costochondritis and assured her after blood tests and CT scan of the chest that it was not cancer. Her inflammation markers were very high. How can a CT scan be clear of cancer and 2 weeks later show up as cancer in a pet scan?
Her recent pet/ct shows that area to be cancer (sternum) plus additional areas such as spots on her neck and pelvis and an SUV of 9.9 at T12. One area that they were concerned about initially, her L3 was not mentioned at all.. This area lit up initially and a biopsy came back negative.
We are going for 2nd opinions and of course insist on a biopsy due to her flare up of RA.
One thing I noticed was that the radiologist that read her report is actually a cardiology specialist, I don't know if that makes a difference in the reading of a pet scan for a breast cancer survivor.
Would appreciate your comments and of course understand that only her medical doctors can give a definite diagnosis. But based on experiences with other patients and your knowledge of Pet Scans if you have anything to say to ease our minds until we get more diagnostic testing.