After two infusions of the trial drug, the PT/CT scans showed growth in my many lung nodules/lymph nodes. Since I felt lousy, was still losing weight (down over 20 lbs), needing pain meds for hip/back pain and had SOB, the trial doctor and I decided it was time to stop. I restarted Tarceva the next day. This was about 2 weeks ago. I feel somewhat better.
The trial doctor suggested looking into the Clovis trial but right now I don't feel interested in traveling or going through another biopsy etc etc. I'm leaning more toward returning to chemo - the taxanes have been good to me over the years.
I'm also in discussions with my radiation oncologist about radiating the T12 area. It could provide relief from some symptoms I'm having. However the radiation field would most likely have a little overlap of an area radiated in 2011. We'll continue talking.
It'll be seven years at the end of this month that I've been living with LC. This is the first time I've felt so lousy. I don't like it!!
But I will continue to hang in and make the best decisions I can about how to go forward.
I think of you all even though I rarely post.