Hello, my name is Tom Norkunas, I'm just introducing myself and our situation. Glad to have found this site.
Here's our plight.
66 year old wife of 25 years with stage IV lung cancer, adenocarcinoma NSCLC. Her mother, father and one sister died from lung cancer, another sister and another brother from colon cancer, one brother from multiple myeloma. Another brother 6 years on from squamous cell lung cancer diagnosis. Two older sisters still OK, older brother still OK.
10/08/13 XRAY, pneumonia infiltrate
10/14 CT Scan
10/17 Lung specialist consult, Minnesota Lung Center. CT result, mass in right lung, plueral effusion.
10/24 Thoracentesis. 1 liter
10/30 Lung specialist consult. Cancer, adenocarcinoma, stage 4, oncologist referral, Minnesota Oncology.
11/1 CT scan of brain (ordered by oncologist). Hadn't considered possibility of THAT, anxiety skyrockets.
11/6 Initial consult with oncologist, brain clear, whew. Cancer not 'galloping', referral to surgeon to deal with infiltrate.
11/8 PET scan
11/11 Visit with surgeon, schedules VATS
11/14 Video assisted thoracoscopy with pleuradesis, biopsy. 2.5 liters. Waiting for genetic marker test results
11/25 Visit oncologist. PET scan shows no surprises. Still no genetic marker results. Argh. The results were supposed to be in by now!
12/4 CT scan, still no marker results. Argh. Getting upset. Some growth, but pleuradesis effective.
12/5 Marker results negative. 4 rounds of chemo (carboplatin, paclitaxel, bevacuzimab) ordered, enrolled in maintenance study - bevacuzimab v pemetrexed v bevacuzimab/pemetrexed combo.
12/9 1st chemo
12/12 shaved head, wig, er, cranial prosthesis.
12/16 Visit with oncologist, side effects tolerable, labs OK
12/18 Power port installed
12/30 Labs OK, 2nd chemo
1/17 CT scan
1/21 oncologist, labs good, CT scan shows shrinkage, 3rd chemo.
2/10 fourth chemo scheduled, maintenance study after that, then who knows?
Starting to be internet addict on lung cancer topic.
Thanks for listening,