First of all...

A Big Thank You to all who participate in clinical trials!  You make advances in care possible.

Hello All,  I'm very proud to be a part of Grace.   In the beginning...of the internet, my doctor told me to stay away from it (which I did not) but today the best doctors will give you pointers on how to access good information and often the best help comes from the experiences of others who are or have been there.  The web is the perfect place to concentrate your voices into a force that can generate real change. 

Please read on and be safe,

Janine

Patient Perspectives: Clinical Trials Experiences Through Storytelling

We are inviting all cancer patients with experience in clinical trials (no matter how large or small) to join us in this new program giving voice to the clinical trials experience.  

Through storytelling and sharing their experience, patients can educate others who are considering a clinical trial about this part of the cancer journey.  All cancer patients currently enrolled in or with past enrollment in a clinical trial are welcomed and encouraged to apply.  

Patients selected to participate in this years program will work closely with GRACE to develop new educational content for patients across a range of platforms that will help them to become established contributors in the area of advocacy.  Participants will receive training on digitally distributed content and social media, and their work will be highlighted and shared by GRACE, along with its network of established leaders in the oncology community and board members with an array of interestes and connections.  Participants will receive a stipend, training in communication and media platforms, and a tech 'package'.  Participants will work with GRACE to develop program formats and production and will present a proposal based on their area of experience in a clinical trial program.  

For more information, please take a look at and complete our online Program Form and Application, or download the .pdf version available above, which can be emailed as an attachment to dbrock@cancerGRACE.org.  If you have questions please contact Denise Brock, Operations Director for GRACE at dbrock@cancerGRACE.org

First of all...

A Big Thank You to all who participate in clinical trials!  You make advances in care possible.

Hello All,  I'm very proud to be a part of Grace.   In the beginning...of the internet, my doctor told me to stay away from it (which I did not) but today the best doctors will give you pointers on how to access good information and often the best help comes from the experiences of others who are or have been there.  The web is the perfect place to concentrate your voices into a force that can generate real change.

Please read on and be safe,

Janine

Patient Perspectives: Clinical Trials Experiences Through Storytelling

We are inviting all cancer patients with experience in clinical trials (no matter how large or small) to join us in this new program giving voice to the clinical trials experience.  

Through storytelling and sharing their experience, patients can educate others who are considering a clinical trial about this part of the cancer journey.  All cancer patients currently enrolled in or with past enrollment in a clinical trial are welcomed and encouraged to apply.  

Patients selected to participate in this years program will work closely with GRACE to develop new educational content for patients across a range of platforms that will help them to become established contributors in the area of advocacy.  Participants will receive training on digitally distributed content and social media, and their work will be highlighted and shared by GRACE, along with its network of established leaders in the oncology community and board members with an array of interestes and connections.  Participants will receive a stipend, training in communication and media platforms, and a tech 'package'.  Participants will work with GRACE to develop program formats and production and will present a proposal based on their area of experience in a clinical trial program.  

For more information, please take a look at and complete our online Program Form and Application, or download the .pdf version available above, which can be emailed as an attachment to dbrock@cancerGRACE.org.  If you have questions please contact Denise Brock, Operations Director for GRACE at dbrock@cancerGRACE.org

First of all...

A Big Thank You to all who participate in clinical trials!  You make advances in care possible.

Hello All,  I'm very proud to be a part of Grace.   In the beginning...of the internet, my doctor told me to stay away from it (which I did not) but today the best doctors will give you pointers on how to access good information and often the best help comes from the experiences of others who are or have been there.  The web is the perfect place to concentrate your voices into a force that can generate real change. 

Please read on and be safe,

Janine

Patient Perspectives: Clinical Trials Experiences Through Storytelling

We are inviting all cancer patients with experience in clinical trials (no matter how large or small) to join us in this new program giving voice to the clinical trials experience.  

Through storytelling and sharing their experience, patients can educate others who are considering a clinical trial about this part of the cancer journey.  All cancer patients currently enrolled in or with past enrollment in a clinical trial are welcomed and encouraged to apply.  

Patients selected to participate in this years program will work closely with GRACE to develop new educational content for patients across a range of platforms that will help them to become established contributors in the area of advocacy.  Participants will receive training on digitally distributed content and social media, and their work will be highlighted and shared by GRACE, along with its network of established leaders in the oncology community and board members with an array of interestes and connections.  Participants will receive a stipend, training in communication and media platforms, and a tech 'package'.  Participants will work with GRACE to develop program formats and production and will present a proposal based on their area of experience in a clinical trial program.  

For more information, please take a look at and complete our online Program Form and Application, or download the .pdf version available above, which can be emailed as an attachment to dbrock@cancerGRACE.org.  If you have questions please contact Denise Brock, Operations Director for GRACE at dbrock@cancerGRACE.org

First of all...

A Big Thank You to all who participate in clinical trials!  You make advances in care possible.

Hello All,  I'm very proud to be a part of Grace.   In the beginning...of the internet, my doctor told me to stay away from it (which I did not) but today the best doctors will give you pointers on how to access good information and often the best help comes from the experiences of others who are or have been there.  The web is the perfect place to concentrate your voices into a force that can generate real change.

Please read on and be safe,

Janine

Patient Perspectives: Clinical Trials Experiences Through Storytelling

We are inviting all cancer patients with experience in clinical trials (no matter how large or small) to join us in this new program giving voice to the clinical trials experience.  

Through storytelling and sharing their experience, patients can educate others who are considering a clinical trial about this part of the cancer journey.  All cancer patients currently enrolled in or with past enrollment in a clinical trial are welcomed and encouraged to apply.  

Patients selected to participate in this years program will work closely with GRACE to develop new educational content for patients across a range of platforms that will help them to become established contributors in the area of advocacy.  Participants will receive training on digitally distributed content and social media, and their work will be highlighted and shared by GRACE, along with its network of established leaders in the oncology community and board members with an array of interestes and connections.  Participants will receive a stipend, training in communication and media platforms, and a tech 'package'.  Participants will work with GRACE to develop program formats and production and will present a proposal based on their area of experience in a clinical trial program.  

For more information, please take a look at and complete our online Program Form and Application, or download the .pdf version available above, which can be emailed as an attachment to dbrock@cancerGRACE.org.  If you have questions please contact Denise Brock, Operations Director for GRACE at dbrock@cancerGRACE.org

In this video, Dr. Agarwala discusses adjuvant therapy for melanoma.    Download Transcript Here

Meredith McKean MD, MPH with Tennessee Oncology, Michael Postow, MD Chief of Melanoma service at Memorial Sloan Kettering and Sanjiv Agarwala, MD, Professor of Medical Oncology and Hematology at Temple University School of Medicine in Easton, PA joined GRACE to discuss current updates in treatment for Melanoma.

Check in regularly to our home page for new, up-to-date videos and articles then join us here on our forums to discuss or ask questions.  If we, the moderators can't confidently comment on your post we ask our faculty to join the conversation.

Take care,

Janine

In this video, Dr. McKean discusses combination immunotherapy vs. monotherapy for Metastatic Melanoma.   Download Transcript Here

Meredith McKean MD, MPH with Tennessee Oncology, Michael Postow, MD Chief of Melanoma service at Memorial Sloan Kettering and Sanjiv Agarwala, MD, Professor of Medical Oncology and Hematology at Temple University School of Medicine in Easton, PA joined GRACE to discuss current updates in treatment for Melanoma.   

Check in regularly to our home page for new, up-to-date videos and articles then join us here on our forums to discuss or ask questions.  If we, the moderators can't confidently comment on your post we ask our faculty to join the conversation.  Check in regularly to our home page for new, up-to-date videos and articles then join us here on our forums to discuss or ask questions.  If we, the moderators can't confidently comment on your post we ask our faculty to join the conversation.

Take care,

Janine

In this video from the AM Question and Answer Session of the event, Drs. West, Raez, Weiss and Janne discuss the role of liquid biopsies to track disease response and the potential for acquired resistance.

Denise is breaking down the plethora of information from the 2020 Targeted Therapies Forum.  Thanks DBrock!

For a full break down of the 2020 Targeted Therapies Forum, search, "2020 ttf"

Don't miss the transcription links at the top of the page, just under the subtitle.

Stay safe,

Janine

Here's another end of year review of new data.   Watch out, it's hopeful!

"Debio/ Xevinapant Study Update What Have We Learned About Debio 1143 (Xevinapant) in Combination with Chemoradiation Therapy for Patients With HNSCC?"

Here's a new head and neck cancer video.  Not only can't I say enough about how much I appreciate learning about new findings but they speak about the fact that they have different approaches to the same case description.  Just knowing that lets me know I need to discuss my goals and options for treatment when there isn't a clear direction. 

"For this discussion, Drs. Bauml, Weiss, Gold and Mehra discuss what we have learned from Keynote 048: First Line Regiments of Pembrolizumab Monotherapy vs. Pembrolizumab and Chemo for Patients with Recurrent or Metastatic HNSCC"I

I hope this helps someone or many someones

Janine

The research team at Tulane University is conducting an online survey of individuals with cancer. 

GRACE has been asked to share information about an anonymous one-time online research study about personality and cancer care. They are looking for adults with a history of cancer. A total number of 2,500 individuals will participate in the study, recruited from various social media platforms and websites dedicated to cancer research and patient support.

The survey takes about 30 minutes and involves personalized feedback about results on a personality test.  Additional survey questions will ask about demographics, health history, mood. and feelings about cancer care.  Tulane University hopes that the study will build knowledge that can help individuals with cancer to be more satisfied with their care.  The Principle Investigator is Laura Perry, MS, Doctoral Candidate, and Faculty Mentor is Michael Hoerger, PhD, MSCR.  

To take part of in and learn more about the study, please follow this link: https://tulane.co1.qualtrics.com/jfe/form/SV_2f1b8MH3hkzkvDT?fbclid=IwA…

**Please note that this research study is not a part of GRACE.  This post is provided for informational purposes only.