I am pleased that on my last scan I was declared NED. However, I am not comfortable with this because I have the same symptoms as prior to diagnosis. Surely if I have symptoms then these are evidence of disease? I had symptoms for quite a while (years) before my SCLC diagnosis but on the whole they were discounted because nothing was evident on imaging. I would like treatment to continue as I am convinced that my symptoms are from some residual tumor. Is it normal to have to wait until the tumor shows on imaging again to have more treatment, irrespective of symptoms?
Thank you for any information,