Where in the world? ..ALK gene sequencing outside NA. Seeking links & contacts - 1294158

3 posts / 0 new
Last post
kronk
Where in the world? ..ALK gene sequencing outside NA. Seeking links & contacts - 1294158

As international teachers our contracts take us to countries outside of NA, Aus, Europe and we are usually left to try to source and resource for ourselves. Luckily, as my wife being a 5yr veteran of ALK wars, we needed and found some quick and inexpensive (self funded, no insurance) Cyberknife and Truebeam in Istanbul Turkey (Medipol). .
Recommendation
5 Hospitals in Istanbul have excellent options for radiation treatments with full package plans. Very inexpensive and good international departments with state of the art technical devices and training.

Questions
1.We are hoping to use our wide web of you interested, knowledgeable and supportive members to find a location other than US for the new test that is able to identify and isolate changes to the ALK mutation?
2.Further, as Saule is beyond 2nd generation (Ceritinib and Alectinib), any suggestions/information on status and efficacy of Lorlatinib and other 3rd gen options would be much appreciated?

JimC
Hi kronk,

Hi kronk,

Dr. West and colleagues discuss new options, including Lorlatinib, in this discussion.

In addition, you may be able to find clinical trials for your particular location at clinicaltrials.gov, which covers the entire world.

JimC
Forum moderator

<p>I began visiting GRACE in July, 2008 when my wife Liz was diagnosed with lung cancer, and became a forum moderator in January, 2010. My beloved wife of 30 years passed away Nov. 4, 2011 after battling stage IV lung cancer for 3 years and 4 months</p>

kronk
thank you for the prompt

thank you for the prompt reply Jim... great place to start. Im on it.