Hello I am hoping to find someone who is going through what I am. My son was born in 2012 About a yr And half before he was born I started getting a real bad pain in my back at the bottom right side. I went to doctors who eventually sent me for a ultrasound which to them seemed normal even though they found a dermoid cyst on my ovary the pain never stopped just got worse but then I fell pregnant and tried to forget about the pain as I was severely sick they told me this was hyperemesis well after my son was born I continued to be sick I went to the doctors telling them how tired I am even though I had a baby this was different. Anyway last year after another hospital admission I went private through the nhs and started to have varied tests coloncoscopy endoscopy barium meal etc which all was normal, until dec when I had a ct scan of pelvis and abdomen which showed bone lesions so then I had a MRI spine which also showed numerous lesions. I have A lump in my breast so they went with a mammogram and ultrasound and said that was ok I had inconclusive test for fna lymph nodes and MRI breast inconclusive but still I was told I had secondary cancer and was going to die then they changed it to myeloma and then poems syndrome but my bloods or scan wasn't showing cancer I am extremely ill fatigued lost movement in my right leg hot sweats etc. they then said it could be benign but I am in a lot of pain and in a lot of painkillers including morphine. I was sent to a metabolic bone centre and he hasn't seen original MRI or ct scans but made me have a dexa scan which he said lesions are everywhere I just can't cope anymore I have 5 children and have been bed bound most of the time I have just spent 2 weeks in hospital because of the sickness has anyone had anything similar to me and what was the outcome?
Tue, 07/21/2015 - 03:54#1
Widespread bone lesions cannot find primary - 1270537