Article and Video CATEGORIES

Cancer Journey

Search By

Patient Education Ambassador Program - Rafeh Naqash MD, Understanding Clinical Trials Part 2
2020 PEA Program - Rafeh Naqash MD, Clinical Trials Series with Ivy Elkins and Dr. Fumiko Chino MD
Author
Abdul Rafeh Naqash, MD
Image
Dr. Rafeh Naqash, one of the participants in the GRACE Patient Education Ambassador Program, shares a fantastic video series on understanding clinical trials.

 

For this series, Dr. Naqash speaks with Ivy Elkins, Patient Advocate and Lung Cancer Survivor and founder of the EGFR Resisters Patient Group, (https://egfrcancer.org/founders/) and Fumiko Chino, MD, a Radiation Oncologist with Memorial Sloan Kettering Cancer Center (https://www.mskcc.org/cancer-care/doctors/fumiko-chino).

In these videos, Drs. Naqash and Chino and Ms. Elkins discuss:
  1. Are Placebos Used in Phase 1 Clinical Trials?  How Does this Differ from Trials in Other Phases?
  2. Could A Trial Be Right For Me Even If My Doctor Didn't Know About It?
  3. How Do I Manage Potential Side Effects I Might Experience on a Clinical Trial?
  4. How Will Being on a Trial Potentially Impact My Daily Life?
  5. How Much Will a Clinical Trial Cost?  How Does the Billing Work, and What About Emergency Treatment and Other Expenses?  
  6. Does A Clinical Trial Have Provisions or Resources for Stress or Mental Health?
  7. What Happens if I Have To Leave a Clinical Trial?

 

 

#clinicaltrial #genentech #lilly #cancerGRACE

 

 

To join the conversation, visit https://cancergrace.org/forum.

 

 

Video Language

Next Previous link

Previous PostNext Post

Related Content

Article
Advance directives are a powerful way to take control of healthcare choices. These documents allow you to outline preferences for medical care and specify end-of-life wishes. These documents can also be a way to appoint loved ones who you would like to help with these decisions, such as a healthcare proxy (someone to make decisions on your behalf, if you cannot). As cancer treatments can involve aggressive treatments and/or complex medical management, having advance directives ensures that your desires regarding treatment options and end-of-life care are clearly communicated. 
Image
2024-25 patient perspectives header
Article
Tell your story and help us help others! Apply online now for this paid opportunity. This program gives a voice to those who have experience in participating in a clinical trial for a cancer diagnosis. Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial.  We want to hear from you!
Image
Foro de Pacientes de Terapias Dirigidas de Cáncer de Pulmón
Video
¡El vídeo completo bajo demanda está disponible para verlo!

Forum Discussions

Hi elysianfields and welcome to Grace.  I'm sorry to hear about your father's progression. 

 

Unfortunately, lepto remains a difficult area to treat.  Recently FDA approved the combo Lazertinib and Amivantamab...

Hello Janine, thank you for your reply.

Do you happen to know whether it's common practice or if it's worth taking lazertinib without amivantamab? From all the articles I've come across...

Hi elysianfields,

 

That's not a question we can answer. It depends on the individual's health. I've linked the study comparing intravenous vs. IV infusions of the doublet lazertinib and amivantamab...

Recent Comments

JOIN THE CONVERSATION
That's beautiful Linda…
By JanineT GRACE … on
I could not find any info on…
By JanineT GRACE … on
Hi elysianfields,

 

That's…
By JanineT GRACE … on
Hello Janine, thank you for…
By elysianfields on