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Lung Cancer Support Community: A collection of patient discussion threads with broad participation that helps foster a true sense of community for patients and families of those with lung cancer. Funded by the LUNGevity Foundation, the only organization in the United States dedicated exclusively to funding lung cancer research.

National Lung Cancer Partnership: Formerly Women Against Lung Cancer, this group still focuses significantly on gender differences in risk for and treatment outcomes of lung cancer, but continues to grow and broaden its scope. They support clinical research and education about lung cancer and particularly women with lung cancer, and the site contains information for both patients and clinicians, with links to ongoing trials.

Lung Cancer Online: Developed by lung cancer survivor Karen Parles, this site features a remarkable collection of resources, including extensive links to other sites with valuable information about identifying specialists, work-up of lung cancer, treatment options, and clinical trials for the full range of patients facing lung cancer.

Lung Cancer Alliance
: The only national non-profit organization dedicated to support and advocacy for those with lung cancer or at risk for it. Information, support, news, and other resources.

LCA Survivors Community: Among the many offerings of the Lung Cancer Alliance, this network provides discussion boards and blogs as part of an online community for those affected by lung cancer.

Lung Cancer Caring Ambassadors Program: Nonprofit dedicated to patient advocacy as well as education for the lung cancer community. They offer an educational guidebook called With Every Breath that can be ordered exclusively through their site, with content also offered free as pdf files for each chapter.

Lung Cancer Action4Life: After her husband was diagnosed with NSCLC in 2006 and encountered difficulties with obtaining certain drugs like Tarceva because of the limitations of the health care system there, Deanne Jenkyns started a website dedicated to providing information and practical advice aimed at increasing treatment options for lung cancer patients. They offer a combination of support and grassroots political action.

Lung Cancer Information Center: An electronic library of educational materials on cancer for healthcare professionals and patients.

MedLine Plus, Lung Cancer: A very comprehensive collection of manuscripts, links, and news covering the entire range of lung cancer from genetics and underlying causes, screening controversy, and treatment options. Sponsored by the US National Institutes of Health, and the US National Library of Medicine.

Joan’s Legacy: The Joan Scarangello Foundation to Conquer Lung Cancer, founded in memory of a never-smoking woman who developed bronchioloalveolar carcinoma (BAC), supports clinical research and journalism about lung cancer, with a special focus on recognizing never-smokers, BAC, and women with lung cancer.

Never-Smokers with Lung Cancer: A website fostering a network for never-smokers who developed lung cancer, with links to articles about this subtype and emerging research.

Roy Castle Foundation: UK-based charity dedicated to eradicatin lung cancer, supporting research and education particularly about early detection and smoking cessation.

The Mesothelioma Center offers the most comprehensive information on asbestos exposure and treatment options for those who have received a mesothelioma diagnosis.

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Forum Discussions

Hi elysianfields and welcome to Grace.  I'm sorry to hear about your father's progression. 

 

Unfortunately, lepto remains a difficult area to treat.  Recently FDA approved the combo Lazertinib and Amivantamab...

Hello Janine, thank you for your reply.

Do you happen to know whether it's common practice or if it's worth taking lazertinib without amivantamab? From all the articles I've come across...

Hi elysianfields,

 

That's not a question we can answer. It depends on the individual's health. I've linked the study comparing intravenous vs. IV infusions of the doublet lazertinib and amivantamab...

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