I was diagnosed with LCNEC Dec., 2018. This diagnosis was made by Stanford.
i received 4 rounds of Carbo/Etroposide and. PET scan in April showed I was stable. Chemo was stiopped as my blood work continued to be low and was on a Chemo break.
Just had another PET scan that showed previous spots have grown and the cancer has spread. It started with a tumor in my left lung, is in sone lymph nodes. More in the liver and on both ad real glands now. Doctors was rather shocked to see it had become so aggressive.
Thete is no treatment protocol for this cancer. I receive treatment close to home. Stanford doctor wants another brain MRI and has suggested Abraxane and Keytruda. I was told Keytruda was just approved for this 2 weeks ago.
Thete is so little information about treatment for this cancer. I am wondering if anyone has dealt with this cancer.