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dbrock
Posts:162

Operations Director, GRACE

 

Welcome to the new GRACE site!

Here we hope to provide a place for our community members that go beyond lung cancer.  Our amazing faculty is building and we would like to share their knowledge with others, to provide a place for those dealing with other types of cancers. 

Share our forum with others, and please consider this a safe place to discuss and ask questions about living with cancer.  

Operations Director for GRACE. Have worked with cancerGRACE.org since July 2009.  Became involved as a caregiver to my best friend, and quickly came to see that GRACE is filling a need in the area of cancer education. 
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Breast Cancer Member Updates

Reply # - July 23, 2023, 07:29 PM

mdanderson
Posts: 2
Diagnosed with stage 3C small cell endometrial cancer in 2018. Treated at MD Anderson with chemoradiation (6 cycles) and no reoccurence so far.

I have Lynch syndrome and was diagnosed with small cell endometrial cancer in 2018. In remission since my treatment. My gastroenterologist suggests I get a colonscopy/endoscopy every year because of Lynch syndrome. However, I have been getting PET/CT scans every 6 months to monitor for small cell cancer recurrence. Do I need to still get the colonoscopies every year? Also, do most gastroenterologists offer sedation-free colonscopies?

Lynne Constantinides

Reply # - July 24, 2023, 05:18 AM

JanineT GRACE …
Posts: 657
GRACE Community Outreach Team

Colonoscopies use a different technique to look for polyps that could be suspicious.  They couldn't be expected to be picked up on CTs especially if it's still small.  Sorry, about that.  Mine is due soon.

 

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

Reply # - July 23, 2023, 07:42 PM

mdanderson
Posts: 2
Diagnosed with stage 3C small cell endometrial cancer in 2018. Treated at MD Anderson with chemoradiation (6 cycles) and no reoccurence so far.

I was diagnosed and successfully treated for small cell endometrial cancer in 2018, so 4.5 years in remission. My last PET/CT scan showed a new lung nodule (12mm with suv max 1.2) and new hypermetabolic thyroid nodule (5mm). My last scan one year ago was clear. I have had chronic uticaria for the past 3 months, so suspect the nodules may be caused by inflammation. But because I had small cell cancer (which I know is highly aggressive), was wondering how soon I should ask for my next PET/CT? Also, I assume it would be better to get a PET/CT than a CT?

Lynne Constantinides

Reply # - July 24, 2023, 05:03 AM

JanineT GRACE …
Posts: 657
GRACE Community Outreach Team

Hi Lynne,

Welcome to Grace.  Congratulations on the successful treatment.  It sounds like the worrying results could easily be that infection.  The current standard is to take CTs when there is the possibility of recurrence.  This from the American Cancer Society, "If symptoms or the physical exam suggests the cancer might have come back, imaging tests (such as CT scans or ultrasounds), a CA 125 blood test, and/or biopsies may be done. Studies of many women with endometrial cancer show that if no symptoms or physical exam changes are present, routine blood tests and imaging tests aren't needed."

Best of luck,

Janine

 

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

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