I have alk + Stage IV NSCLC since 2008. Five years ago I went on Brigatinib for asymptomatic brain mets with great results. In Jan, several tiny brain mets started to grow and because one was near the medulla, GK was recommended. I had that done a month ago and within days, developed sharp, shooting pain up the right posterior side of my head and have an extremely tender scalp. The GK nurse said she has never had anyone report the symptoms I'm having. The neurosurgeon recommended I see the neurologist who said my symptoms are classic for occipital neuralgia. It's gotten a little better with a change in NSAID.
I'm wondering if others have had a similar experience and if so, how long before it resolved?
Thank you for your help.