My father, 63, was diagnosed in May with NSCLC, stage 3b, large tumor in the left lobe and affected lymph nodes on the other side. At the time, Dr.s said that other scans were clear. My dad, a smoker, was tested for, though no genetic markers were found. He had chemo and radiation therapy. During his treatment, several (hopefully minor) errors occurred:One, when the oncologist changed one of the drugs from transfusion to oral administration, he forgot to change the dosing, and my father received too little of the drug until they found the mistake, 1 week later. Second, my dad swelled up with "near" SVC syndrome as he was waiting several weeks before they started radiation, after diagnosis (supposedly the dr.s needed the time to create a plan for his radiation therapy). This was resolved after radiation was started. Third, my dad got a blood clot from the chemo catheter--he'd been really swollen in the face the duration of the treatment, and as soon as the catheter was removed by emergency surgery, the swelling immediately went down. Lastly, on a post treatment scan they found a "small spot"on my dad's brain, which, when they re-examined the initial scans, they noticed had been there all along. This spot changes my dad's staging from 3b to 4. One dr. said if they'd seen the spot originally, they would not have offered him radiation for the lung tumor in the first place. They did a one time radiation treatment on his brain, and we are waiting for the results on this. Otherwise, the treatments, which finished at the end of August, were successful in that the tumor did shrink (though it is still sizable, I don't know all the measurements but I know one measurement was still 6cm), and he tolerated treatment well. Now the plan is maintenance chemo, Alimta, for undetermined duration. My parents are visiting a specialist at MS-K to see if they might discover any alternatives. What questions they should be sure to ask to get the most out of this consultation?
Thu, 10/18/2012 - 12:09#1
Second Opinion - 1249202