Rene@1957
Posts:1
<p>I was dx'd with Bronchioavelor Carcinomna (BAC) in Sept 2011. I tested postive for EGFR and was placed on Tarceva and I have been on it for almost ten years and have remained pretty much stable. I recently had a pet scan and it did show I have a hpermetabolic airspace disease a with an SUV of 5.7 and my oncologist belives I have hit the Tarveca resistance wall and wants to put me on Tagrisso (which I am fine with). The rest of my pet scan was clean and no mets anywhere.</p><p>Still waiting gene mutation results to come back from a recent lung biopsy but If I already tested postive for the EGFR ten years ago would that still be the case thiis time?</p><p>Thanks Rene</p><p> </p>
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Reply # - May 18, 2021, 07:08 AM
Welcome to Grace Rene. I'm
Welcome to Grace Rene. I'm sorry you're going through this. It's common for a lung cancer with an EGFR mutation to mutate again during treatment. Most commonly to a T790Mutation which tagrisso can treat. You want to make sure this is progression that calls for a change. If you don't have T790M you might want to get a 2nd opinion on next steps with some one who treats a lot of BAC if you're not already.
I'm glad you've done so well and hope you continue on that path. let us know if you have other questions.
All the best,
Janine
I hope
I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.
Reply # - May 18, 2021, 09:25 AM
Lots of helpful BAC info in art. and commnets
I don't know if you've seen it. This article and comments (no longer taking) surely can provide at least one or 2 new observations about BAC.
I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.