Hello, everyone. I have been intermittently reading these forums for about a year and this is my first time posting. My spouse is a 61-year old former smoker (quit 25 years ago). We need your help.
In April of 2016, my spouse was diagnosed with one single kidney stone (she had it for years and it moved and caused pain, had to be removed). Long story short, it was a very complicated process, she had an infection, was in the hospital over a week, and during that time, they took a pre-op standard chest xray, which showed a nodule or two. During her hospital stay for the kidney stone operation, she was around a patient who had a horrible respiratory condition that sounded terrible. Weeks later she got sick with what was a bronchitis/respiratory infection. I don’t know if any of this is related but sharing all this.
After her kidney stone crisis, low-dose CT scan of the chest was completed and it showed multiple nodules in both lungs. After seeing a pulmonologist, family doctor, and thoracic surgeon, it was decided to have VATS. This was done by a skilled surgeon locally, and she spent 5 days in the hospital.
Diagnosis was made as follows and the tissue was sent to Johns Hopkins for evaluation:
• Submitted lung wedge biopsies of right upper lobe, superior segment of right lower lobe, and inferior segment of right lower lobe.
• Lung wedge biopsies showing multiple foci of alveolar hyperplasia.
• Foci of mild interstitial fibrosis.
• No granuloma or obvious malignancy seen in completely sampled tissue.
It was ruled she has atypical adenonmatous hyperplasia. He calls this a pre-cancer.
She has since seen an oncologist at Penn Medicine, he is well knowledged and even calls his patients with follow up questions you need answered.
He has her going for ct scans every three months.
Most upsetting to me: He told us initially back in 09/16 to prepare for a “spectrum of badness” and that these are the most controversial of all types. They call it a precancer based on th