We still cannot get a handle on the diarrhea issue. At a lower dosage we had it somewhat controlled, but the dosage was too low to contain the cancer. Now the dosage is alternating days of 50 and 75mg of the Tarceva.
We maintained a food diary (21 months) helps a little but only to eliminate a certain food. Taking 6 Imodium pills for months, 2 at each meal. Lomotil and other medicines were too strong and did not seem to help. Eating rice and or pasta daily, eating a Graham cracker in the middle the night and some shredded coconut at meal time.
Most recently tried Citrucel first at ½ caplet 3 times a day increased it to 1 ½ caplets 3 times a day , this works for about 7 days than diarrhea returns. Also tried Heather's Tummy Tamer fiber powder, this also only lasted about 7 days.
Diarrhea almost always hits in the morning, it used to be about 2 hours after breakfast now it about 3 hours. Also the warning time was about 5 minutes now it is about 2 minutes to get to a bathroom.
Any suggestions about what else we can try? Any new therapies coming down the road?