My wife is experiencing a second time brain tumor recurrence. She had her first occipital craniotomy back in 2011. On late Oct 2013 she began to experience different vision artifacts and visual migraines but with no pain. Radiation oncologist had a hard time differentiating between radiation necrosis or cancer recurrence. In 2015 the visual migraines began to come with headaches and the headaches later became intolerable. Finally, on Dec 12, 2015 a second occipital craniotomy was performed. Among the massive necrotic tissues, the surgeon found viable cancer cells. Meanwhile she has also developed acquired resistance to Tarceva which she has been taking since 2011.
Now almost three years later from Dec 2015 her MRI on 0ct 3, 2018 revealed interval growth again in her right occipital lobe suspicious for recurrent tumor. Enhancement of the ependymal layer of the occipital horn of the right lateral ventricle is suspected to have transependymal extension of tumor.
Her medical oncologist and the radiation oncologist are at odd with what is the best approach for this localized cancer met from her lung cancer. She is currently on decadron to reduce fluid pressure in her brain to buy time for a best final decision. Any comments on experience in dealing with the two fronts of her battle is appreciated.