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Hello, I want to share this video, Cancer Growth Rate and Managing Slow-Growing Lung Cancers. A lot has changed in treatment and management in the last 8 years but here's one thing that still needs to be considered. When someone's cancer progresses how aggressively should its management be? Often it depends on how relatively fast or slow or how widespread the progression is.
When cancer is metastatic you can think of treatment as a marathon. You want to use as little for as long as possible. Terms like oligoprogression have come into fashion when thinking of how to make a treatment last longer. For example, someone with an EGFR mutation progresses on tagrisso may be able to kill the resistant cells with radiation then continue on tagrisso as before. or Someone whose cancer progresses only slightly may take a "watch and wait" approach. For example, don't change a treatment that is otherwise working and manageable, and see what the scans show in 3 months. It might be that nothing much changes.
Of course, with everything cancer, it depends on the individual. Everyone's cancer is different, some "typically" aggressive cancers are indolent and vis verse. Anything can happen. This might to the occasion to see your 2nd opinion onc and get another head in the game.
Take care, Janine |
Management of Indolent vs Aggressive Progression | General Discussion! | JanineT GRACE … | |||||
Lung Cancer OncTalk 2024 a Live, Virtual, Interactive,Free, Patient Ed Webinar | General SCLC | JanineT GRACE … | ||||||
Register for free and join us on this live, virtual and interactive patient education event!
This event includes presentations and panel discussions covering general subjects relevant to a diverse range of lung cancers and treatment options, as well as an opportunity to speak with the experts in a Q&A session. Speakers include top medical professionals presenting patient-focused discussions to educate the patient and caregiver communities. |
Lung Cancer OncTalk 2024 a Live, Virtual, Interactive, Patient Ed Webinar | General NSCLC | JanineT GRACE … | |||||
Register for free and join us on this live, virtual and interactive patient education event! This event includes presentations and panel discussions covering general subjects relevant to a diverse range of lung cancers and treatment options, as well as an opportunity to speak with the experts in a Q&A session. Speakers include top medical professionals presenting patient-focused discussions to educate the patient and caregiver communities. |
OncTalk a Live Virtual Interactive Patient Ed Webinar | General Lung/Thoracic Cancer | JanineT GRACE … | |||||
Just in case you missed our homepage, our lung cancer webinar, Lung Cancer OncTalk 2024 is on February 10 at 8 AM Pacific/11 AM Eastern. Register here. Soon you will be able to find the agenda and event faculty linked on the registration page.
If you have questions don't hesitate to ask.
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Live, Free, and Interactive Webinar-OncTalk on Lung Cancer 2/10/2024 | General NSCLC | JanineT GRACE … | |||||
This article, The Side Effect Roulette of Cancer Treatment discusses the benefits of frank talk with your care team about side effects. Many people don't realize their oncology team can mitigate many side effects and symptoms. We've come a long way from the days when cancer treatment didn't include pain management let alone side effect symptom managment.
We have a long way to go and social media is stoking the fire by sharing info with others new to the game, "Meanwhile, patients continue to crowdsource from others on social media, to supplement information from their clinicians and drug materials, Wall said. Cancer survivors also can offer reassurance to others, reminding them that everyone’s experience with side effects may be different and not to assume the worst, she said. “That is a major point of those forums existing to my mind,” she said. “We help each other with that information. People come in and say, “I was newly diagnosed. They want to give me this. Is anybody on it? What can you tell me about it?’’”"
Take care all, Janine |
Self Advocacy-Talk to Your Doctors and Others Who've Been There | Symptoms and Side Effect Management | JanineT GRACE … | |||||
I found this article, Patient Perspective: Patients With EGFR+ NSCLC May Still Opt for Quality Over Quantity After FLAURA2 on Tagrisso (osimertinib) Patients & Caregivers Group. It's written by Ivy Elkins. She's cofounder of the patient advocacy group The EGFR Resisters and a member of the ILCN Editorial Group. All 3 of these groups are excellent resources for cancer education...As is GRACE, of course :).
I've learned from oncologists mostly through GRACE how important individual choice, balance of quality and quantity of life, communication between onc and patient, and education and advocacy are. Here is a person living with cancer and raising a family who has written this important commentary about the FLAURA2 trial. |
Patient Perspective on the Flaura2 Trial | Stage IV NSCLC | JanineT GRACE … | |||||
Reminder...Videos from our live blood cancer onctalk forum, agenda, and accompanying slides are available here. This link includes link to YouTube video of entire forum and a link to registration which also has link to agenda so you can find specific info without going through the whole video. |
ONDEMAND Videos Available for the September 2023 Blood Cancer OncTalk | General Blood Cancer | JanineT GRACE … | |||||
OncTalk 2023 was a big success and is available here. Soon the video will be broken down into small bites of specific info, Until then you can find the agenda and faculty bios here.
Take care, Janine |
OncTalk2023 Is Now Available on Demand | General Blood Cancer | JanineT GRACE … | |||||
GRACE is passing this info along.
My name is Alex Sylvester and I am a producer with Itchy Rodent Films, LLC. I am reaching out on behalf of our independent documentary film “Spoke” about fire captain Rudy Pospisil. In the span of twenty years, Rudy battles cancer successfully three times and goes riding his bicycle around the world to raise awareness for the disease. On his journey, he meets and befriends many cancer patients. The reason I am reaching out is to invite a few patients to come join for filming. We believe the presence of someone currently in the middle of their healing journey, someone who meets and interacts with Rudy would make for a beautiful and inspiring moment in the film. “Spoke” aims to bring people together through powerful storytelling, to raise awareness and grow the cancer support community stronger. We understand and respect that this is a very sensitive matter. We will do everything possible to create a comfortable environment that is safe for anyone who agrees to join us in telling this heartfelt and inspirational story.
Specifics
SPOKE the incredible journey of fire Captain Rudy
This independent documentary film is produced by Itchy Rodent Films. Director is Bogdan Darev and the crew and supporting cast consist of local film professionals working in the film industry.
SYNOPSIS "Spoke" is the real story of firefighter Rudy Pospisil who gets occupational prostate cancer in 2001. Rudy is married with three young children when he is told by an oncologist to "get his affairs in order”. After surgery and treatment, during time off from work, Rudy goes around the world on his bicycle to raise money and awareness for cancer. He raises 50K which is donated for cancer research on four different continents. Rudy cycles through the US, Western Europe, Thailand, New Zealand and Australia. He sets two world records. Prostate cancer comes back in 2016. In 2019 he battles lung cancer. Today he is free of cancer.
Rudy’s incredible journey serves to show people a cancer diagnosis is not the end to living a rich and inspired life. Thank you for your time and consideration of our documentary film. If you can get back to us as soon as possible we would greatly appreciate it.
Alex Sylvester Producer @ Itchy Rodent Films
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Patient Advocacy Documentary Producer Looking for Volunteers | General Discussion! | JanineT GRACE … |