Post Date Body Has new content Topic Forum Name
Tue, 09/27/2022 - 10:28

How easy or difficult do you find communicating with your care team?

I came across this discussion by Dr. West, Better Communication Leads to Better Outcomes for Cancer Patients

I would say if you find yourself in a situation where your "communication" isn't taken as a serious piece of your cancer management remind your onc of this study...have the study especially the conclusion bookmarked or printed out to share.

More about the specifics of the trial presentation at ASCO would probably be an even better example to share and show how important the oncology community takes this info. 

Such an important piece of self-advocacy! 

Take care,

Janine

Better Communication Leads to Better Outcomes for Cancer Patients Discuss! JanineT Forum …
Tue, 09/13/2022 - 14:04

Sex is almost always a neglected subject in cancer care.  I'm so glad and proud of our staff that we have this excellent article in both Spanish and  English

Wishing all well,

Janine

Sexual Health During Cancer Treatment--- La Salud Sexual Durante el Tratamiento del Cáncer General discussion JanineT Forum …
Tue, 09/13/2022 - 10:10

If you're like me finding specific info isn't always straightforward online. Denise has written a post on the subject here.  I hope this is helpful :)

Navigating GRACE's Video Series General discussion JanineT Forum …
Mon, 08/01/2022 - 11:41

The webinar has ended but you can watch this recording on-demand Here.

Watch On-Demand 2022 Terapias Dirigidas en Español Foro de Pacientes General NSCLC JanineT Forum …
Mon, 07/18/2022 - 12:35

Our Targeted Therapies Forum was Saturday 7/16/2022. The forum was/is packed full of excellent, understandable, and useful information from our faculty of lung cancer specialists and Terri Conneran Founder of KRAS Kickers, lung cancer survivor, and patient advocate. Terri added a very important dimension to the day (she's one of us, a layperson who has a most personal stake in cancer treatment and patient advocacy).

 

You can watch it on-demand. NOTE: you need to scroll PAST, "Play Welcome Video" and "Test Your Connection"

down to the videos in orange boxes at "Morning Session", "Breakout Sessions", and "Afternoon Session" Here is the Agenda and Faculty Bios

Watch Videos of 7/16/22 Targeted Therapies Live Forum General NSCLC JanineT Forum …
Thu, 06/16/2022 - 09:19

In order to help prepare as many people as possible to be educated members of their own cancer care team, Grace is having its annual Targeted Therapies Forum live...online. In English on July 16, 2022, and in Spanish on July 30, 2022. Top oncologists in their field will meet online to discuss present standards of care and clinical trials. There will be large and small group discussions and Q and A.  Check in regularly as we get the schedule set. 

Live, Virtual and Free Targeted Therapies Forum July 2022 General NSCLC JanineT Forum …
Mon, 02/21/2022 - 11:02

Hi all -- share your cancer journey here and connect with others.  Cancer.gov has a good general description of Cholangiocarcinoma.  This rare disease has support information and programs that can be found at cholangiocarcinoma.org.  

Our Clinical Trials page, https://cancergrace.org/find-clinical-trials, is a helpful place to search for clinical trials for all cancer types.  

 

 

Share your story in the forums General Gall Bladder and Bile Duct Cancers dbrock
Tue, 02/01/2022 - 16:01

Gallbladder Cancer is a rare disease in which malignant cells form in the tissues of the gallbladder.  Bile duct cancer or cholangiocarcinoma is a rare disease in which malignant cells form in the bile ducts.  Help us to bring awareness to these rare cancers during the month of February.  Start talking and raise awareness to Gallbladder and Bile Duct Cancer Awareness Month!

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February is Gallbladder and Bile Duct Cancer Awareness Month
February is GallBladder and Bile Duct Cancer Awareness Month General Gall Bladder and Bile Duct Cancers dbrock
Sun, 01/16/2022 - 08:56

I've started this thread for a new member I've been messaging with and we wanted to bring the conversation to the forums.
Pandora wrote about her person who has a pancoast tumor and since my husband also had one wants to hear what I have to add.
Her last post said, "I just wanted to know how your husband dealt with the disease. My father in law has an abdominal aortic aneurysm. He is 76 and thw pdl 1 is >1-49%, which is not so good regarding to the treatment with immunotherapy in first line."

Don was very sick for a while and the tumor left lasting physical problems but chemo and radiation cured him. He like everyone with nsclc had a lot of individual issues that make comparison difficult (it's why many oncologists look at each case as an individual type of cancer). But the destruction the tumor caused in his ribs and brachial plexus is likely similar. Your father in law with an abdominal aortic aneurysm may benefit from consulting with a vascular or cardiac specialist to help guide treatment options such as possible chemotherapy after radiation. Chemo with or after radiation adds a few percentage points to the cure rate.

Has radiation helped with his arm and shoulder pain and what has his doctors said about systemic (chemo, immuno) options in consideration to AAA?

All the best,
Janine

Dealing with a Pancoast Tumor Diagnosis Locally Advanced NSCLC JanineT Forum …
Sat, 11/06/2021 - 10:04

Just in case you've missed or misplaced our 2021 Targeted Therapies Forum check out Grace's refreshed Front Page links and links to the new faculty video series on clinical trials.

 

 

Clinical Trials, Targeted Therapies General NSCLC JanineT Forum …