Hello,
My mom was diagnosed in 2010 with stage 3 (I think 3B) inoperable lung cancer. She responded well to chemo and radiation and the oncologist said she was in remission. She lost quite a bit of weight and began having a chronic cough after treatment which they attributed to the treatment itself. Despite both, she kept up her energy for the most part and seemed to be getting her strength back. For the last four-five months, though, she\'s lost more weight (weighs 100 pounds on a 5\'8\" frame) has no appetite, no energy (was sleeping 18 hours a day) and didn\'t do anything other than get up to use the restroom. She was exhausted. The pulmonologist, oncologist and primary care doc had been monitoring her and in February, the oncologist was concerned about a spot on her lung and wanted to get a biopsy. But before we could, her lung filled up with fluid and she nearly died. She\'s been in the hospital three weeks and has a pleurx catheter in her lung and is drained every other day. She was treated with IV antibiotics for two weeks and her energy, appetite and coloring improved very much. They stopped the meds a few days ago and she\'s started to backslide. They have biopsied several areas both in her tracha and in her lungs and everything has come back inconclusive. They can\'t determine if it\'s cancer or chronic infection. Her right lung, the top half, is basically useless because there\'s a big cavity in it and I guess a lot of damage from radiation. The bottom of the lung is what fills with fluid.
They have said they are stumped and her case is the talk of the hospital. They said while they haven\'t found cancer per se, they can\'t attribute everything to infection, but they go back and forth. They were interested in doing surgery to get more tissue from her lung but said it is just too risky because she is so weak. The latest tests again show no cancer, but they are talking about starting chemo if they get her stronger. Anyone shed any light on this? Thanks!
Reply # - March 20, 2013, 01:51 PM
Reply To: Lung cancer return or infection?
Reply # - March 20, 2013, 06:18 PM
Reply To: Lung cancer return or infection?
I'm sorry to hear your mom is having such trouble and that her doctors can't seem to determine the cause. If her doctors, with full access to all of her medical records and the ability to examine her, can't diagnose the problem, it would be impossible for the faculty here to do so with the limited information available.
One possible course of action would be to get a second opinion, preferably from a medical center connected with a teaching institution. Even if your mom can't easily travel for an in-person examination, her medical records could be sent for a complete re-evaluation.
Good luck,
JimC
Forum moderator
Reply # - March 20, 2013, 08:16 PM
Reply To: Lung cancer return or infection?
I'm sorry to hear of how things have been going for her. I don't know if this will be comforting or disheartening, but I have worked at several illustrious medical centers in the US over the past 20 years, and I can assure you that even with the most celebrated doctors and institutions, there are still too many people who have incredibly complex problems that elude a clear diagnosis -- no matter where you are.
I know it's not really a great answer to say that there are patients who have complex problems without a clear diagnosis no matter where you go, but everything you describe sounds very believable and truly challenging. There's no obvious "why don't they just do ____?" to figure it out. It really sounds like they're approaching this as best they can, but we sometimes have an incredibly hard time making a very difficult diagnosis in a complex situation, even despite doing the most thorough workup we can.
-Dr. West
Reply # - March 20, 2013, 10:35 PM
Reply To: Lung cancer return or infection?
Thank you both - I know these folks are working very hard and I am very grateful. I think a second opinion can't hurt. I will try to get one. Thank you!