Can Paramediastinal Fibrosis, Bronchiectasis and Radiation be Treated? - 1265147

gramme
Posts:8

Recent CT (Jul, 2014) with contrast reported Low density thyroid (3) lesions stable. Residual right pleural effusion with loculation unchanged (Since 2012): However, my concern is this quote: “Paramediastinal fibrosis and bronchiectasis and radiation is again noted in right upper chest. This wording has not been used on previous CT Reports. Before I was under the impression that this was scarring from surgical removal of nodes, now I am wondering if this report actually warrants immediate treatment? Will fibrosis and bronchiectasis take over the entire right lung if not treated? Will it join with the lower right pleural effusion? Was my previous radiation pneumonitis not resolved, thus the radiation comment?

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Reply # - July 25, 2014, 06:54 PM

Dr West
Posts: 4735

Without knowing the specifics and being involved in your care, we can't know enough about your case to say what to expect or how to proceed. (Your questions are far too speculative for the negligible information we have available.)

From what you're relaying, the report describes some findings that were not used before but alludes to this being stable. Regardless of whether the wording being used is different from one scan to another, there is nothing about stable findings that would lead me to conlude that things will progress or that any intervention is needed.

Good luck.

-Dr. West

Reply # - July 26, 2014, 05:09 PM

gramme
Posts: 8

Thank you for your response. My original surgery plan was for a right thoracotomy instead of lobectomy. There was extensive lymph node involvement throughout the lung and mediastinum, as well as pleural involvement in the lower lobe. Perhaps a thoracotomy would have been a better choice? Originally, (in my home state) I was given 18 months to live and have survived 36.
After diagnosis, I spent 8 months at M.D. Anderson for treatment, and returned for one scan. Now, that I am home I have little faith in the local doctors who took 3 years to diagnose my advanced lung cancer that was apparent on x-rays from 2008. I even got up out of my chair and pointed to the mass and asked what is this. I also coughed up blood in front of the doctor who told me you don't cough up blood with lung cancer. My mother and my sisters died of lung cancer. I knew he was wrong.
Now I get copies of all my reports because they are the only explanation I am given other than: "They are good." My doctors seem to know a lot about breast cancer, but little about lung cancer. And NO, I am positive I never smoked.
Thank you for addressing my anxiety - My real question should have been do they really know what is stable?

Reply # - August 16, 2014, 02:57 PM

aunttootsie001
Posts: 324

Hi guys! It's had for me to find a spot to ask a question. As some of you know I lost my Son Chris 46 on the 17 th of July do to Complications as they tell us. My Question is because I' on Xalkori I try to be cautious with my other Meds. Even went off bladder Meds and stomach Meds. When all this started April 10 I was already taking Xalkori 250x2 a day 1 Celexa 10 mg once a day. Along with syntoroid. As his treatment got more difficulty I asked for a little something else to help take the edge off. That's when 1mg Ativan was added.1mg 2 a day.. Well Chris's passed on the 17th we were all there except his teen boys.i did very well the first week trying not to upset my Grandsons. It has been 1month this past Thursday. I am very much a basket case, crying all the time! Day and night. my question is am I taking too much or not enough' I trust all of you and idon't see Dr. Hemrock until after my CT on the 17th. In the mean time in am walking 3 miles a day almost. I don't have much of an appitite or desire to be around people. Lorrie

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