Well, here we are again - the yearly update.
5 years ago my wife got the diagnosis that changed our lives. This year is one that is even more emotional for me than the last ones, given that a few weeks ago we didn't even know if my wife would make it to this day. A failing liver, an episode of fainting - each day, each week, seemed like such a blessing. And then, one more drug, one more burst of hope. And now we are in that strange place - hoping the drug works for a long time, but knowing that unless something major happens this may be the last drug she is eligible for. The last few weeks have been amazing - liver greatly improving, and once more feeling like there is a future. All from a clincial trial drug. In a few weeks we will have another CT scan and get a better sense of the extent of the improvement.
It is hard to believe it has been 5 years - now the ninth line of treatment for my wife. Side by side, ups and downs, with this last year being the biggest scare of all. Yet, throughout it all - we fill our lives with love, and laughter, and smiles. And my wife, as always, remains more worried about others than herself. Our kids are happy and healthy and we somehow pass the time each day doing various sundry things (and avoiding many of the plethora of ZOOMing things around).
The times are strange for everyone, and even more so negotiating medical issues other than COVID. We pray for a world soon free (or mostly free) from the virus, and for the health and recovery of all those affected with the virus. It has changed our world, and like so many have said, may the world we emerge into after this pandemic be one where health care is more equitable, we realize the importance of our connections even more, and that love flourishes as never before. To all those on this website, my deep thanks as always to helping us navigate the diffcult times and to know that whatever else, we are never alone. May your lives be filled with all the blessings you give to others. Onward, onward, with hopes and dreams for another update next year!