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March 20, 2018 at 2:04 pm #1294118
JimC Forum Moderator
JimC Forum Moderator
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Forum moderator
Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then:

Posts: 45

I am not sure if you are able to address this question for Cancergrace. Over the years I have been benefited by all for the highly educational materials and information made possible by the existing of cancergrace. Question: Whatever happened to all the rich, meaningful and beneficial information and exchanges over the years accumulated by the registered patients and caregiver and faculty hard labor of love? Is there a web link or URL address that one can still go into to search for information? What a wastes it would be if by setting up this new website format that we all have to start from scratch to build up the rich database of information.

JanineT GRACE …
Posts: 606
GRACE Community Outreach Team

We are working to bring the archived forums up so our members can view older discussions. Please be patient - nothing is lost with the new site, we are simply attempting to find the most stable, cost effective way of providing that information. If you have a specific conversation you would like to reference, please feel free to contact us with the information and we can search it out individually.

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

Posts: 3

Hi Btlaw, and Janine -
yes - still working on it. It is more difficult than originally we thought with the way the old site was put together. We made some good inroads today so hopefully there will be more info soon. Apologies for the time it is taking!
Denise (my test account!)