Non-Small Cell Lung Cancer Patients and Caregivers -- opportunity to participate in a study for 'Rare Patient Voice'

Tue, 12/04/2018 - 13:53

Hi All - 

I was approached by a WhatNext Group partnered with Rare Patient Voice, with the opportunity to participate in a study specifically for Non-Small Cell Lung Cancer patients and caregivers.  I am neither at this time (though I was in the past), and so declined their offer.  I did, however, tell them I would pass on the information to our community through the forums.  If you are interested in participating, please sign up with WhatNext (, or email Ingrid Kaugars at   The study, if it is a fit for you, offers $125.00 for what they say is a 75-minute process.  You must contact them for an individual unique link.  :) 


Below are some of the details, to help you decide if you want to participate.  

Thanks for being a member of WhatNext, partnered with Rare Patient Voice. We have an opportunity for you to take part in a Cancer study. It is for Non-Small Cell Lung Cancer. Our project number is ZS_2592.

Study Details:

  • Looking for Non-Small Cell Lung Cancer patients and caregivers
  • Webcam interview
  • 75 minutes
  • $125 reward

Things to Note:

  • Patient and/or caregiver study
  • Unique links, please do not pass along for 2nd use
  • Want to share this opportunity? Let us know and we can provide a new link
  • Please use a laptop/computer ONLY. No smartphones or tablets - Preliminary questions are Mobile Friendly!
  • Save this email to reference if you have any questions about the study!


Just sharing, I think avenues to get the patients heard are excellent - so if this is any help, I am happy to share it.