I've been on Tagrisso since July 2017. I had great initial response with all visible cancer shrinking to the point of no longer being detected except for one solitary nodule that shrank from 1.8 cm to .6 cm. In August 2018, a scan showed the nodule had doubled in size in 10 weeks and a met appeared on a rib. The nodule was radiatied. Scans Dec 2018 showed the nodule had again reduced to about .5 cm, the rib met remained stable and another rib met appeared to be developing.
My doctors have said they will radiate the rib mets when the pain increases, but nothing else. A growing lung nodule and 2 new rib mets seem indicative of progression to me, but no concerns have been raised. At what point should I be expecting my team to be discussing further testing (like a PET scan or biopsy?) and/or adjusting my treatment?
I am having increased pain but am trying to manage until my next scan which is scheduled March 2019. I am unsure how concerned I should be about the possibility of progression or if I should feel greater urgency about addressing the rib pain.