Well, apparently my elevated eosinophil white blood cell count was an indication of an immune reaction. They went up a few more times, and I was still asymptomatic, but my oncologist took me off treatment in Aug. By Sept. the pain, stiffness, cramping, swelling, hit and has continued. Been to PCP, ER, Pain Clinic, rheumatologist, physiatrist, palliative care and had ultrasound, CT, MRI, lots of bloodwork. These specialists don’t know, and I understand that; our oncologists are still in uncharted territory with IO patients who were among some of the first to be treated in clinics right after FDA approval. I need some information in (relative) lay terms to figure out how to get a proper diagnosis and treatment. This has been worse than any time before or during cancer treatment. We’re grateful for the benefits of IO, but also went into it knowing there were also risks. But many of us are here and should be celebrating a great response, but are suffering from adverse events that only became documented during our (Phase IV) treatment based on our experiences, but the lack of data being released leaves many of us helpless to get the proper care and treatment. What do people suggest?
Fri, 02/09/2018 - 14:04#1
Rheumatic and Musculoskeletal adverse events - 1293947