My wife is in good health after 19 months on 150 mg Tarceva daily - she is in remission, reasonably fit and enjoying life.
Side effects are diarrhoea every 3-5 days, and persistent paronychia on a few fingers and toes, all tolerable.
She had Tarceva rash, but cured it by twice daily washing with Phisohex, taking baths with paraffin oil, and using various (heavy) skin ointments. Her skin is much less dry than it was. She always wears heavy skin protection when in the sun.
But her skin is now painful all over her body, and it can become extremely itchy, especially when she is hot. Sleep is difficult. On occasions angry red spots appear, then subside in a few hours. There are no eruptions/pustules involved.
There are many comments on Grace on lotions etc that may help - but we have tried many of them, and the comments are a few years old. Can anybody provide any new tips on relieving painful skin?
She is desperate enough to consider reducing her dose from 150mg. Is this likely to help?
Many thanks in advance for any guidance provided - Grace is a godsend in our situation, as is Tarceva - and the field of TKI's is moving so quickly the medical professionals we see have little experience of it.