Welcome New Grace Members - 1272926

Hello I am happy to be here. I have NSCLC DX 12/12. Had a right upper lobectomy. Had two rounds cisplatin/alimta then had blood clot in port. was fine until 2014 when mets to spine was found. Had radiation to spine. Then on Tarceva until this month. Now it has stopped working and I have numerous new masses in right pleural area with a small effusion. Will start Alimta chemo Monday. Any input will be helpful. I am 59 and never smoked. Thank you Shelly

Hello all. I m Marsh. this is my first post for my intro. I'm actually looking for mesothelioma patient, and know more abt it. thanks

I'm not sure how to tackle this but anyway name here is Ken, 71 yy and live in Ontario Canada ,I was diagnosed about 10 weeks ago as having lung cancer, had 3 x3 Chemo's so far, Oncologist was quite pleased with my progress after the 'hand" inspection he made 2 weeks ago, I have read quite a bit about some treatment that is done in Cuba, Canada is evidently taking part in these treatments and I was wondering if anyone had any input regarding them

I'm new to CancerGRACE as well and I'm checking out the forums.

Hi, i'm new to CancerGrace. My name is Joleen and we are waiting for my mom to have a pet scan, MRI and bronchoscopy/biopsy next week. They found a "fist sized mass" in her lung last week, along with a pleural effusion which did not show any malignancy. Very nervous for the test results, and waiting for her to have a PEG tube placed as the tumor is not allowing her to keep food down. I'm 34 weeks pregnant and truly hoping she will get to meet her grandchild. I've read the lung cancer statistics and am having a hard time staying optimistic. Any experiences, advice, etc would be greatly appreciated!

Hi everyone. I'm new to Grace, have stage 4 lung cancer with metatisis to the brain and abdomen. I am presently getting radiation therapy to the brain. I imagine I will be asking a lot of questions and seeking advice in the near future. All response will be greatly appreciated. May God bless you all. Jim

Thank you Janine. I will having a bronchoscopy done tomorrow 9/30/2016, to get a biopsy. Hopefully, I will then know exactly which critter I'm dealing with. Finished with full brain radiation treatments yesterday 9/28/2016. Right now I don't have cancer, cancer has me. I hope to turn that around soon, with Jesus, all the support I'm receiving, medical tx.s, and help from GRACE. Thanks to you again!

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Thank you SO much for this site! I found great info on this site when I was originally diagnosed with NSCLC in 2014. After my lobectomy in Feb. 2015, staged 1B, I assumed I would be cancer-free forever. Unfortunately, this week a CT revealed that the cancer has returned in both lungs and I am eager to gather as much information as I can to give myself the best outcome possible.

Thank you so much for the reply and words of encouragement, Janine! In addition to the moral support, this site has already provided me with invaluable answers to some questions I've had regarding first line treatments (e.g., Afatinib v. Tarceva, Immunotherapy v. oral targeted therapy for EGFR mutations).

Thank you again!

Hello all, I am Tanya Dean, I am new to this forum. Glad to meet similar community.

Hi, My name is Nance. i was 5yrs post squamous cell or lower r lobe remove, than 5 mos chemo cicplat and gemzar...life was good- then had critical drop in sodium level (110) ended up in hosp where they discovered a new primary small tumor in myL l upper lobe they say it is causing the sodium problem. more studies being done to find out the exact dx, other than malignant, also lot of nodes floating aroung my right lung, they are telling me this is a "new" primary not associated with my prior squamous. and not squamous this time. i am joining your group, so when i get details,i can find out more. thanks for letting me be part of this, i will be contacting your group with more information, and am still in shock, i had been feeling so good about beating lung cancer. (faces of lung cancer referred me to you folks. thanks so much
ee

9

yep, got new path report- siadh due to a small cell undifferentiated type. not pretty at all. oncologist is gung ho to start chemo- with the SIADH caused by the small cell tumor, from what i have read, my prognosis is pretty grim. i feel like i have no choice though. if the SIADH won't get better until the tumor shrinks, it's a catch 22 for me. i have to try to shrink the tumor. funny thing is i swore i would never do chemo for small cell, due to the low survivial rate. god has played a little joke on me. gotta give it 200% to try. i have a great support group, and some fine docs, but can use all the info, and facts you folks can offer. I am a realist is what I consider is a realistic attitude. not real stupid. BUT if my docs are giving me 150%, then I need to give it even more. thanks for any info you can provide. Many t

Hello, new to the forums and would like to find a user here, can we message between users?

i don't have that answer, but i am willing to discuss others and my own diagnosis to learn more about it.
would love to get more information.

Thanks for the reply Catdander, I am trying to reach out to Sherry, I havnt seen any cuurent post from her and was wondering if all is well

Her screen name is/was Sherry. No other letters.

New member. Hoping to find information and support for my friend as her caregiver. D.C. 10/2016 with stage 3a lung cancer, anterior Right middle lobe, as well as, lymph node on right mediastinum. Having severe COPD, not a candidate for lobectomy or resection of lung. 11/2016: Received six weeks of radiation and chemo (carboplatin and taxol). 2/1/2017: 3 brain mets discovered. Currently receiving WBRT for 5 treatments. 2 down, 3 to go. Brain scan in Nov did not show any metastasis. The type of lung cancer is adenocarcinoma non-small lung cancer. The metastatic brain lesions seem to have appeared very quickly. My question is: How rapidly does a cancer cell multiply? I thought I read the cell division occurs within 6.4 days, but I haven't been able to locate the article I read that in. Do you have any incite you could share?

Hello to All! I have recently been diagnosed with mucosal melanoma in the paranasal area and would like any info that I can obtain about it including experiences from other with MM patients. I have had 2 surgeries and the second had clear margins. I know that this is rare and highly aggressive and I am seeking any info such as the staging process of it and any future methods of determining any further progression of it. Thank you!

Just a newcomer here dropping by to say "Hi."
My name is Joyce and I am from Florida.
I am looking forward to having great interactions with you in the future. I guess that's it for now, you guys have a good day!

Hi Joyce,

Welcome to GRACE. I'm sorry that you need to be here, but please let us know if you have any questions, and we'll be happy to help.

JimC
Forum moderator

Hi. I have been dying to ask a question, but do not seem to be able to figure out how??????

My question is this.......can a new pure ground glass opacity show up after never having any before and last CT of October 28, 2015 showed nothing pop up at 2 cms X 2.2 cms on July 26, 2017 scan.

I had an incidental one found on lower scan dated 4.25.17 that went away on this one but now it shows I have a large on in upper left lobe and two smaller ones in left lingual .6 X .8 mm and in lower left lobe of the same size.

I was put on antibiotics after one in April that went away and now have been put on antibiotics again (completed ) to rescan in 6 weeks.

In October 26, 2015 scan they did find for the first time mild bronchiectasis in upper left lobe and some atelectasis in bottom left ( the later has gone away).

Can a huge one pop up after 639 days when there were none evident?

Freaking out Is an understatement!

Thanks so much for any help!

Marcy Roney

Hi, I am a new member though 1.5 years out from diagnosis of NSCLC, EGFR. I am 62 female never-smoker.from LI, NY. Originally diagnosed in my lumbar due to severe pain, primary found in lung, mets to bone & brain. Two biopsies, two Cyberknifes: lumbar spine and brain. Radiation to spine and left iliac crest. 9 months on Tarceva; had every side effect with no benefit. I have been on IV chemo for 5 rounds (every three weeks) with Avastin, Carboplatin & Alimta. Avastin was removed after 3 sessions due to severe constant headache (still have). Nausea and bloating. My Onc will now put me back on Tarceva or member of same family. I am not a candidate for Tagresso; my mutation did not change. If Tarceva was ineffective for 9 months why would it be considered again now? Would a re-challenge of Tarceva possibly work? Cyberknife worked well on lumbar and brain; they continue to monitor MRI every three mos. Tumors in right lung are staple, no shrinkage, no new ones after IV chemo. Are there any others Chemo pills to be recommended at this time?

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My name is Lee-anne im 41 and have just this week found to have a suspect mas on my lung am awaiting PET scan and biopsy to see what we are dealing with.
So far all other ct's show no other lesion's.
Scared is an understatment.

My wife started experiencing generalized upper thoracic pains 3 months ago. We visited no less than 7 local practitioners, she spent a month on physio with Tens treatment without relief. Pain increasing almost on daily basis. Met with an irresponsible chiropractor that probably should only practice on Sear's lifeless mannequins, not humans with extreme pain.
Eventually, by presenting ourselves at hospital Emergency and not accepting generalized diagnostics, we came to learn of "abnormality at T7 with pathological fracture and compression and lytic destruction of much of the vertebral body, consistent with metastatic lesion".
At this finding, she was given morphine for pain. The morphine provides some short-term relief and now we are going on to learn more ab this condition.
Now we seem to have something on which to focus.
I find extreme difficulty in accepting that she had to continually accept inconclusive diagnoses from so many practitioners. It seems her visits were scripted: questions asked, answers typed into a computer and little local or practical options considered.
In one situation, a triage nurse apparently disagreed with the software diagnosis. She enquired from a colleague, who indicated to accept the software qualification.
I hope with support and information through Grace, we will achieve comfort in the short-term and curative results.

pondman, was she diagnosed with cancer of any kind? I can't imagine any PT or chiropractor treating anyone who hasn't had a current xray. I known they didn't with me when I had a compression fracture of the T11. They did do a biopsy and thankfully mine wasn't cancer related but osteoporosis. Another whole can of worms! Are you located in the US? Sometimes we need to advocate for ourselves or our loved ones and push to get what we feel we need. Wishing you all the best. Take care, Judy

Hi Judy,
Fortunately, the diagnosis is NOT cancer at this point. The suspicion seems to support cancer on the basis of uterine cancer nearly 20 years ago. We are in Ontario Canada with socialized medicine. I assure you that this is the kind of "benefit" I would wish for everyone.
We are now scheduled for a needle biopsy tomorrow. From this extraction, we will know if it's cancer and presumably the exact source or cause of it.
From that our oncologist will then provide the strategy and aspiration.
We have our fingers crossed for a good outcome.

Hello I am newbie here. Please accept me guys. Thanks!

Hi Mark,

Welcome to GRACE. Please let us know if you have any questions, and we'll be happy to provide answers. It's good to have you as a member of the GRACE family!

JimC
Forum moderator

Thank you so much JimC for your kind words. Glad to be a part into this community. lol

Hello everyone.