Janet Freeman-Daily is a writer, science geek, and lung cancer patient/activist. She received a diagnosis of advanced non-small cell lung cancer in May 2011 which became metastatic despite chemotherapy and radiation. After learning about genomic testing and precision medicine in online patient communities, she joined a clinical trial for ROS1-positive lung cancer and has had no evidence of disease for over four years.
After twenty years in aerospace systems engineering, Janet is now a full-time patient activist who translates the experience and science of lung cancer treatment and research to improve outcomes and quality of life for lung cancer patients. She co-moderates the Lung Cancer Social Media (#LSCM) Chat on Twitter as @JFreemanDaily, blogs at grayconnections.net, and is one of the leaders of the Global ROS1 Initiative. She has spoken at events and on videos for lung cancer advocacy organizations, hospitals and cancer research centers, oncology conferences, President’s Cancer Panel workshops, and the National Cancer Institute.
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I am Denise Brock - the Operations Director for GRACE, the Global Resource for Advancing Cancer Education. I began working with Jack West in 2009, 1 year after my best friend was
There is not a ton of info available for Cholangiocarcinoma, so seeing information come up with new developments is always exciting. In this video, Rachna Shroff MD, chief of Gastrointestinal Medical
Hi all -- share your cancer journey here and connect with others. Cancer.gov has a good general description of Cholangiocarcinoma. This rare disease has support information and programs that can be
Keep your eye out for new Head and Neck information soon!
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Hi Stan! It is good to hear from you -- I am so very happy you are doing well. I agree with Janine
Stan - Thank you once again for your kind words. Thank you as well for your donation. As you know
I had a very wonderful conversation with a fantastic person, Tom Murphy, after he had started Barb's
Janine -- I know how my world felt, but how is your world different? - thankfully your husband is
Thank you Janine for mentioning the program! I wanted to make the point that this program offers a