Janet Freeman-Daily, Patient Advocate, Live Forum Moderator

Janet Freeman-Daily, ROS1 patient, Targeted Therapies in Lung Cancer Patient Forum 2017
#LCSM Twitter Chat co-moderator, Cure Today contributor, Gray Connections blogger
Seattle
WA
Specialties
ROS1 patient, #LCSM Twitter Chat co-moderator, Cure Today contributor, Gray Connections blogger

Janet Freeman-Daily is a writer, science geek, and lung cancer patient/activist. She received a diagnosis of advanced non-small cell lung cancer in May 2011 which became metastatic despite chemotherapy and radiation. After learning about genomic testing and precision medicine in online patient communities, she joined a clinical trial for ROS1-positive lung cancer and has had no evidence of disease for over four years.

 

After twenty years in aerospace systems engineering, Janet is now a full-time patient activist who translates the experience and science of lung cancer treatment and research to improve outcomes and quality of life for lung cancer patients. She co-moderates the Lung Cancer Social Media (#LSCM) Chat on Twitter as @JFreemanDaily, blogs at grayconnections.net, and is one of the leaders of the Global ROS1 Initiative. She has spoken at events and on videos for lung cancer advocacy organizations, hospitals and cancer research centers, oncology conferences, President’s Cancer Panel workshops, and the National Cancer Institute.

 

https://grayconnections.net/about-janet/

Conflict of Interest

None

GRACE is excited to continue to build the faculty and agenda for the upcoming Targeted Therapies Patient Forum, September 16, 2017. See more information about our presenters in Speaker Highlights - today we introduce Janet Freeman Daily, ROS1 patient.

Forum Discussions

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Join us now at https://us02web.zoom.us/s/82170808361

the Q&A begins 11:25 ET!

Last Activity: Sat, 08/12/2023 - 07:47
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Hi there -- 

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montalcino

I am Denise Brock - the Operations Director for GRACE, the Global Resource for Advancing Cancer Education.  I began working with Jack West in 2009, 1 year after my best friend was

Last Activity: Tue, 07/18/2023 - 14:24
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There is not a ton of info available for Cholangiocarcinoma, so seeing information come up with new developments is always exciting.  In this video, Rachna Shroff MD, chief of Gastrointestinal Medical

Last Activity: Thu, 10/13/2022 - 17:04
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Hi all -- share your cancer journey here and connect with others.  Cancer.gov has a good general description of Cholangiocarcinoma.  This rare disease has support information and programs that can be

Last Activity: Mon, 02/21/2022 - 11:15
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Keep your eye out for new Head and Neck information soon! 

Last Activity: Sat, 02/05/2022 - 12:12

Comments

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Original Post: Three Year Post Update

Hi Stan!  It is good to hear from you -- I am so very happy you are doing well.  I agree with Janine

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Original Post: Two Years After....

Stan - Thank you once again for your kind words.  Thank you as well for your donation.  As you know

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Original Post: Jim's caregiver story

I had a very wonderful conversation with a fantastic person, Tom Murphy, after he had started Barb's

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Original Post: Denise's Story

Janine -- I know how my world felt, but how is your world different?  - thankfully your husband is

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Thank you Janine for mentioning the program!  I wanted to make the point that this program offers a