niftyd
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Posts:5
I was just diagnosed with arteriovenal necrosis. I took steriods during WBR for a total of about a month at the most. No one seems to know where this came from.
If you do have AVN, how are you being treated?
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Reply # - March 30, 2016, 07:23 AM
Hello niftyd,
Hello niftyd,
Welcome to GRACE. I'm sorry to hear of this complication. It doesn't appear that anyone here on GRACE has reported a similar problem, and I haven't found much treatment information on other sites, other than that if the necrosis is causing symptoms, steroids seem to be an appropriate choice.
Perhaps a consultation with a radiation oncologist might be helpful.
JimC
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