I was diagnosed with Stage 4 Lung Cancer in July 2015. Was put on Afatinb until July 2016 but drug resistance appeared in Apr 2016. Did 15 x RT to 2 nodules in May 2016 in the hope to be with Afatinib for as long as posible but unfortunately pleural effusion started to increase since end of June 2016. Stopped Afatinib on 27-7-2016 and was put on chemo (Carboplatin + Alimta) on 27-7-2016 & 18-8-2016.
On 3 Sep 2016, Tagrisso was given to me free of charge under a compassionate scheme so I Chemo was quit even though it worked for me. CEA has dropped from 24 on 2 Sep to 6 on 14 Oct.
On 3-6 Sep 2016, 2.3L of pleural effusion (PE) was drained out but the X-ray showed that my lung could not re-expand to the original position. My Onc asked me to try practice breathing exercises at home but another X-ray today showed that this didn’t help. The empty space is now occupied by fluid. The problem with this PE is that it has caused me coughing for 3 months and my Onc told me to live with it for the rest of my life!! He said as far as he was aware, there is no treatment method to re-expand the lung.
Consulted a lung specilist in early Oct. He was of the opinión that the trapped lung was due to the tumors that had entangled the lung membrane. He asked me to be patient and wait until the effectiveness of Tagrisso to penétrate. By then, the lung will re-expand.
On 21-24 Oct 2016, 2.7L of pleural effusion (PE) was drained out. No sign of re-expansión was found. In fact, the situation has deteriorated. Now I need to use oxygen concentrator at home.
I am most grateful to have your advice how this problem is overcome. Many thanks in advance!