Hi everyone, I'm new here and I'm grateful to have found this site.I created a post a few minutes ago but I can't find it! I hope I'm not duplicating this. I was diagnosed stage 1A add no carcinoma in August 2020. I had my upper left lobe removed via VATs surgery. My tumor was 2.5 x 2.5 x 2.1 cm, adenocarcinoma, lepidic predominant with focal papillary feature. Grade 1-2, well to moderately differentiated. At the time of diagnosis, a PET scan showed a maximum SUV of 24.2 (which I believe is extremely high).
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I am new here looking for advice if this is a right place.
I was diagnosed with Adenocarcinoma for the second time just a few weeks ago. I had VATS surgery 5 years ago to remove very small tumors (2cm) in my right lower lobe. Since that date, I have had CT scans every 6 months. In September the radiologist noticed some growth in what had been a suspicious spot in my left upper lobe. Biopsy confirmed it was the same multifocal, indolent kind of cancer that I had in my right lung. I am schedule for an upper lobe lobectomy in 2 weeks via VATS to remove two ~ 1.3 cm tumors.
I just had a negative annual CT scan 6-1/2 years post-surgery for a 3 cm right upper lobe adenocarcinoma (slow-growing BCC type, EGFR mutation). I had a lobectomy, negative nodes, and no further treatment. My doctor says the risk of another tumor elsewhere in my lungs continues to add up at 3% per year, in other words, it's now at about 20% after 6+ years. They are watching a few small, so-far completely inactive spots in some of my other lobes. Standard of care is to keep having a CT every year for the rest of my life.