Hi all, I’m hoping someone can help here

I was diagnosed with stage 4 in 2018 due to a malignant pleural effusion and have been on Tagrisso ever since due to EGFR mutation. I am still on that but am trying to think ahead for when I do progress..hopefully not for a long while though.

From pretty much day 1 my consultant has warned that it is very unlikely that I will be eligible for any clinical trials due to not having a measurable tumour as the MPE is (all!) I have, no solid tumour has been seen.

Now does that mean;

Hi.  I have stage 4 NSCLC, been on Tagrisso for over a year.  I’m 72 and very healthy otherwise.  I’m fully vaccinated, but nobody - including my doctor - can tell me how well the Covid vaccine is likely to work for someone in my situation.  Where I live,  there is talk of booster shots for people on chemo, but not TKIs.  The antibody tests available are only to see if you have had Covid, not how well  the vaccine is working.  Any thoughts?  Thank you!

2021 EN VIVO ONLINE

Foro Español de Pacientes de Terapias Dirigidas
para pacientes y cuidadores que viven con cáncer de pulmón 22 de julio de 2021 6:30 - 8:00 PM hora del este

¡Regístrate ahora!

Únase a nosotros para este esperado evento anual transmitido en
vivo, que presenta a los mejores oncólogos en su campo
presentando la información más actual y emergente en terapias
dirigidas y respondiendo preguntas de los pacientes en tiempo real, en español.

Agenda

2021 LIVE ONLINE Targeted Therapies Patient Forum July 17, 2021  10:00 AM Eastern     

I'm 57 and recently diagnosed with nsclc with negative EGFR, ROS, ALK but with PD-L1 > 80.  The tumor in my lung is in the right lower lobe about 2-2.5 cm in size, and only one bone met about 3cm in my right ala. 

Hello,

Can anyone share their experiences with an indwelling Pleurx catheter? Dear Husband had one placed rather urgently 6 weeks ago after two prior thoracentesis procedures about 3 weeks apart. The amount being drained 3x a week was going down for a while and is now trending upwards. Oncologist says that even when systemic treatment is working, the body can continue to create the effusions, requiring the drain to stay in long term.  I'm a bit overwhelmed by that thought and would like to hear from others who have walked this walk.

Thank you,
Joanne

Hello,

My dear husband was diagnosed in early January and after a Guardant360 liquid biopsy that revealed the EGFR mutation was able to start on Tagrisso. The CT scan after 8 weeks shows no change in either of the nodes in the lungs. Does this mean the treatment is not working?

Thank you,
Joanne

Dear Cancer Grace Team,

Thank you for the amazing work you do to support families like us.

My mom (76 year old) was recently admitted to hospital with massive pleural efussion in her right lung.
They performed Thoracoscopy + Talc Pleurodesis and upon performing pleural biopsy they confirmed today it as Adenocarcinoma (IHC markers - TTF1 - nuclear positive and P40 - negative). 

Immediately after biopsy (before report came out), Doctors recommended to start Gefitinib or Osimertinib depending  on our finances.

My husband has been having severe post nasal drip leading to violent coughing and occasional vomiting for one month now.  He is on carboplatin and alipmta.   His team seems baffled by it.  He will have gurgling, coughing, runny nose and then it will stop and he feels dry and no symptoms but then it happens again about every four hours.  CT has ruled out sinus problem and pneumonia.   Looking for help to diagnose and treat.  Looking for answers if this is chemo and/or caused.  Thank you. 

Hello. My mom (aged 79, Stage 4, NSCLC, diagnosed 1/2014, currently on Rozlytrek) had a “Chest CT with Contrast” this week.  Is it appropriate for the result to be compared to her last “PET /CT Without Contrast”? I’m concerned they’re calling possible disease progression but the comparison might not be appropriate. Please advise. Thank you.