Hi, wish I had found this site earlier, but sadly my medical practitioners told me not to look online for details on cancer. After an extensive and complicated workup I was diagnosed with sclc. Nothing showed on CT but some strong suspicions led to bronchial washings being taken, which confirmed sclc. What was strange was that I had no real respiratory symptoms but my doctor was concerned over some other symptoms and blood tests which he later told me pointed him in the search for small cell. Since diagnosis I have been under the care of the oncology team and have been undergoing chemo of cisplatin and etoposide. My questions are
Is it usual to not be able to see the primary on CT?
I have been told that the follow up scans will be CT. But I worry about the value of this other than to show spread rather than effectiveness of treatment, especially since I was essentially NED at diagnosis. Is there any protocol for situations like this.
As I haven't been able to find information on this, I suspect that it is an unusual situation and perhaps the usual care doesn't fit?
I am sorry for such a long first question, I have tried to keep it as short is I can, the whole diagnosis process seemed pretty complicated and I hope I have given you enough details.