Share Your Experiences to Help Others

JanineT GRACE Community Outreach
GRACE Community Outreach Team

First of all...

A Big Thank You to all who participate in clinical trials!  You make advances in care possible.


Hello All,  I'm very proud to be a part of Grace.   In the beginning...of the internet, my doctor told me to stay away from it (which I did not) but today the best doctors will give you pointers on how to access good information and often the best help comes from the experiences of others who are or have been there.  The web is the perfect place to concentrate your voices into a force that can generate real change.

Please read on and be safe,


Patient Perspectives: Clinical Trials Experiences Through Storytelling

We are inviting all cancer patients with experience in clinical trials (no matter how large or small) to join us in this new program giving voice to the clinical trials experience.  

Through storytelling and sharing their experience, patients can educate others who are considering a clinical trial about this part of the cancer journey.  All cancer patients currently enrolled in or with past enrollment in a clinical trial are welcomed and encouraged to apply.  

Patients selected to participate in this years program will work closely with GRACE to develop new educational content for patients across a range of platforms that will help them to become established contributors in the area of advocacy.  Participants will receive training on digitally distributed content and social media, and their work will be highlighted and shared by GRACE, along with its network of established leaders in the oncology community and board members with an array of interestes and connections.  Participants will receive a stipend, training in communication and media platforms, and a tech 'package'.  Participants will work with GRACE to develop program formats and production and will present a proposal based on their area of experience in a clinical trial program.  


For more information, please take a look at and complete our online Program Form and Application, or download the .pdf version available above, which can be emailed as an attachment to  If you have questions please contact Denise Brock, Operations Director for GRACE at



I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.