Hi All - 

I was approached by a WhatNext Group partnered with Rare Patient Voice, with the opportunity to participate in a study specifically for Non-Small Cell Lung Cancer patients and caregivers.  I am neither at this time (though I was in the past), and so declined their offer.  I did, however, tell them I would pass on the information to our community through the forums.  If you are interested in participating, please sign up with WhatNext (www.whatnext.com), or email Ingrid Kaugars at ingrid@whatnext.com.   The study, if it is a fit for you, offers $125.00 for what they say is a 75-minute process.  You must contact them for an individual unique link.  :) 

Below are some of the details, to help you decide if you want to participate.  

Thanks for being a member of WhatNext, partnered with Rare Patient Voice. We have an opportunity for you to take part in a Cancer study. It is for Non-Small Cell Lung Cancer. Our project number is ZS_2592.

Study Details:

• Looking for Non-Small Cell Lung Cancer patients and caregivers
• Webcam interview
• 75 minutes
• $125 reward

Things to Note:

• Patient and/or caregiver study
• Unique links, please do not pass along for 2^nd use
• Want to share this opportunity? Let us know and we can provide a new link
• Please use a laptop/computer ONLY. No smartphones or tablets - Preliminary questions are Mobile Friendly!
• Save this email to reference if you have any questions about the study!

 

Just sharing, I think avenues to get the patients heard are excellent - so if this is any help, I am happy to share it.  

I've lifted this directly from Simon because Simon Always Said it best. 

"We are just ordinary people. At the same time, we are extraordinary, because we are people.  It's enough to think of how extraordinary this forum is, how inspired, how important it has been to people like you and me, because someone thought of it, and it became so, and here we are, otherwise alone, isolated, without the shared feeling that gives us strength to deal with what we must face. 

We are afraid. We fear pain, suffering, grief, loss.  We are not heroes. Yet together, we have more strength than we might. We are family"

Today is Giving Tuesday.  Because Dr. West believed we as laypeople could take in the difficult concepts of cancer treatment and use it to affect change in our or our loved one's cancer treatment I work with Grace.  I'm honored to be a moderator on the forums that helped me so much when my husband went through lung cancer treatment.  

I hope you can and will give.

https://cancergrace.org/donate

All the best,

Janine

Hi Grace Members,

Grace is happy to present in partnership with the Swedish Cancer Institute " Local Therapies for Metastatic Lung Cancer Who, What, Why, When and How?"  this Saturday, November 10, 2018 | 10:00 am– 1:00 pm Pacific time.   This seminar will be available at no charge in person and as a live webinar.

More information here, https://cancergrace.org/post/join-grace-live-seattle-november-10-2018-local-therapies-metastatic-lung-cancer

If you think this info would be helpful I hope you can join us.  

All best,

Janine

Hello Grace Members,

 We are happy to introduce a new partnership with Clinical Care Options to help people better understand treatment options for those just diagnosed with follicular lymphoma.  This is the first of several such tools.  Other cancer decision making tools CCO will produce in the coming year include decision making tools include early breast cancer and NSCLC.

https://cancergrace.org/post/treatment-options-5-experts-newly-diagnosed-follicular-lymphoma-online-tool

I hope you don't and won't need this.

Take care,

Janine

Hii again to the new GRACE.
Please know that we are still working to make the forums better and better. Some of the top things on the list --
Forum Signatures! - We are working to give you a place to make your personal signature show in more than 255 characters or less.
Avatar - Working to give everyone the opportunity to show their personalized picture
Formatting of your text - working to make this active, show links, paragraphs, etc.

Thanks for being a part of GRACE!

Looks like the search function is up on the main pages and forum specific. Nice!

Hello Friends —
We are scheduled to go live with our new GRACE site on September 4 around 3 pm, barring no showstoppers.

The majority of your accounts have been migrated to the new site, except for the newest ones. Those people will need to re-setup their accounts, my true apologies. Everyone else will need to re-sign in and set up their profiles, with new passwords. (sorry – we couldn’t bring all of your information over. I wish we could have).

We also, unfortunately, did not receive enough funding to pay for the migration of all the old forum threads. I am currently trying to copy and paste the newest ones into the new site so we at least have some overlap. Anyone who has written in this forum who is fairly new to GRACE and does not have an account that migrated over will show as anonymous in the threads that I am copying over. After you set up your new accounts I can go in and re-assign any previous threads to your active account in the new site.

There will be some stuff to shake out – including tagging and how the videos and articles are found within the new site. I will be continuing to work on this and ask for your patience and understanding! The good thing is that the search bar works. yay.

Thanks for your understanding, it has been a long time coming, change is hard, but change is good. I think you will like what you see (when we all get used to it!)

Many regards!
Denise

Welcome to the new GRACE site!

Here we hope to provide a place for our community members that go beyond lung cancer.  Our amazing faculty is building and we would like to share their knowledge with others, to provide a place for those dealing with other types of cancers. 

Share our forum with others, and please consider this a safe place to discuss and ask questions about living with cancer.  

Welcome to the new GRACE site!

Here we hope to provide a place for our community members that go beyond lung cancer.  Our amazing faculty is building and we would like to share their knowledge with others, to provide a place for those dealing with other types of cancers. 

Share our forum with others, and please consider this a safe place to discuss and ask questions about living with cancer.  

Welcome to the new GRACE site! Here we hope to provide a place for our community members that go beyond lung cancer.  Our amazing faculty is building and we would like to share their knowledge with others, to provide a place for those dealing with other types of cancers.  Share our forum with others, and please consider this a safe place to discuss and ask questions about living with cancer.