My sister has recently been diagnosed with Lung Cancer and is a carrier of the ALK gene. She underwent Chemotherapy this fall and unfortunately it did not work.
She's 32 and a non smoker. She received the results of her PET today and the cancer has spread in the last 3 months to her bones, liver, brain, back, ribs, kidneys, and just about everywhere you can imagine.
She was put on Xalkori yesterday and is a candidate for Gamma knife radiation to treat the tumors in her brain. They asked that we wait 2 weeks for the tumors to grow to a size that are treatable by this radiation.
Due to the raid rate of growth and how quickly this has spread, I'm concerned that waiting 2 weeks is not the best option and she should consider full brain radiation.
I need to speak with an expert in the ALK Genetic mutation and am having trouble finding someone online. Can you assist me in who to contact and how to contact them?
I think she is a prime candidate for a case study and also in urgent need of help.
What should I do?
Brother of Cancer fighter
303 718 2881