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ABOUT
Denise Brock

Denise has over 30 years of varying experience in the healthcare arena.  In August 2009 she joined The Global Resource for Advancing Cancer Education as one of its first employees.  She has grown with the organization and now oversees the operational movement of programs, efficiency, and effectiveness within the organization, as well as the daily processes and functions.  

 

Patient Perspectives - Clinical Trials Experiences through Storytelling Participants
Tue, 07/06/2021 - 19:21
We are pleased to introduce three amazing clinical trial participants working with GRACE to produce educational content through storytelling!
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Denise Brock
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GRACE is pleased to announce the acceptance of three amazing individuals into the inaugural year of the GRACE Clinical Trials Experiences through Storytelling Program for the 2021-2022 Program Year!

We had an overwhelming response to our call for clinical trial participants who would be interested in creating educational content for others by sharing their experiences!

We are very excited to launch this new program and introduce our participants, whose backgrounds and experiences cross multiple cancer types and a variety of clinical trials.  Our participants will work closely with GRACE to develop new content across a range of platforms that will help them to become established contributors, and reveal their very human experiences in impactful, educational content.  We are excited to unravel these stories and to be able to help others going through similar journeys.

 

2021 Clinical Trials Experiences through Storytelling Program Participants

Melinda Bachinimelinda Bachini

Melinda is an 11-year survivor of stage iV cholangiocarcinoma.  2 years after her diagnosis she was treated at the National Cancer Institute by Dr. Rosenberg with a clinical trial using Adoptive Cell Therapy with TIL.  She shares her story in hopes of giving courage to others in need.    

https://cholangiocarcinoma.org/a-clinical-trial-saved-my-life/

https://cholangiocarcinoma.com.au/melinda-bachini/

 


Linnea OlsonLinnea Olson

Linnea is well known in the Lung Cancer community, having just started her 6th clinical trial.  In 2008 she enrolled in a successful phase 1 clinical trial.  She describes her journey as both "my privilege and my burden".  Her desire is to use her knowledge to help make the trial experience better by discussing what she views to be barriers to participation.  

https://cancerhackerlab.com/linnea-olson/  

https://www.ted.com/talks/linnea_olson_patient_parent_person_research_s…;

https://www.transceleratebiopharmainc.com/mc-resource/lung-cancer-linne…

 


Jared BigmanJared Bigman

Jared was diagnosed with non-Hodgkins lymphoma in college.  In the span of nine years, Jared has had more than six recurrences and participated in four clinical trials.  By sharing his story he hopes that more young adult cancer survivors will have resources available to help them.    

https://www.linkedin.com/in/freelance-writer-health-cancer-pharma-healt…

 


 

 


 
Congratulations Melinda, Linnea, and Jared!  We are excited to work together! 

 

#lilly #exelixis #Novartis #Merck

 

 

 

 

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Stan - Thank you once again for your kind words.  Thank you as well for your donation.  As you know, your donation helps us to exist and continue to fulfill our...

Hi Stan, It's good to hear your voice and know your cheesecakes are still making the rounds.  Though I'm sure startling, I imagine some of those little pockets of the house...

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We can't say what you should or shouldn't do and I can't say why your RA doc made their...

Thank you very much for your quick answer, Janine.

I have an appointment with a pulmonologist in 10 days. I will summarize the conversation with him here, so that other people...

Glad to know you're moving forward with a pulmonologist.  The more you know the better the conversation with your pulmonologist.  Remember you can help your docs know what level their conversation...

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I saw this exact post somewhere else months back and the only response was to a lab.  I hope that doesn't happen here, we don't allow...

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