Cancer Journey


VIDEOS

2022 Program: Mandarin LCVL

王林医生用普通话讨论重要的肺癌信息。这些信息包括靶向治疗、晚期疾病的症状、循环肿瘤 DNA、治疗方案等。我们鼓励您与社区中说普通话的人分享。 Dr. Lin Wang discusses important lung cancer information in Mandarin. This...

Case Based Panel Discussions: Lung Cancer

Drs. Ibiayi Dagogo-Jack, Joshua Reuss, Natalie Vokes, and Kathryn Arbour discuss three hypothetical cases of suspected cancer, from staging to...

Lung Cancer OncTalk 2022: Newest updates

PLAY ALL Videos Lung Cancer OncTalk 2022 This video series is from our live Lung Cancer OncTalk event held annually. We bring together a talented...

The Importance of Testing and Early Diagnosis

For this 2022 Program: Testing and Early Diagnosis, Drs. Devika Das, Medical Oncologist, Hematologist, UAB Medicine, Clinical Assistant Professor...

OncTalk 2021 - Is Broad Next Generation Sequencing (NGS) the Standard of Care?

OncTalk 2021, a live-online, patient education event featured top oncologists discussing Early Stage and Advanced Non-Small Cell Lung Cancer. This...

ARTICLES

The Risk of Overtreating Indolent Bronchioloalveolar Carcinoma
From the Grace Archives | Originally P ublished December 6, 2006 | By Dr West | 25 Comments Bronchioloalveolar carcinoma, or BAC, is a subtype of lung...
Noguchi Classification of Bronchioloalveolar Carcinoma (BAC)
From the Grace Archives | Originally Published December 8, 2007 | By Dr West | 1 Comment I had previously written about a spectrum from pure...
Treating Bronchioloalveolar Carcinoma by Not Over-Treating It: What the Experts Really Do (and Don’t Do)
From the Grace Archives | Originally Published January 20, 2013 | By Dr West | 30 Comments I’m completing a chapter in a key lung cancer textbook on...
The Black Box: Early Palliative Care in Metastatic NSCLC
Published October 12, 2011 | By Dr Harman | 5 Comments In 2010, the world of lung cancer, and cancer in general, was abuzz with an intervention that...
Why Not Palliative Care? Some thoughts on resistance…
From the Grace Archives | Originally Published October 26, 2011 | By Dr Harman | 14 Comments I consider GRACErs a very enlightened bunch regarding of...

ONLINE COMMUNITY

Rozlytrek-
Hello. My mom (aged 79, Stage 4, NSCLC, diagnosed 1/2014, currently on Rozlytrek) had a “Chest CT with Contrast” this week. Is it appropriate for the...
Embryonic adenocarcinoma
I know that I have adenocarcinoma but doctor said also embryonic type. Can anyone explain what it is and does targeted meds for efgr mutation work on...
Tulane University online survey - looking for individuals with a cancer diagnosis

The research team at Tulane University is conducting an online survey of individuals with cancer. GRACE has been asked to share information about an...

Lung Nodule
Hi everyone, I'm new and recently received my results from a LDCT with contrast this morning. They didn't confirm a benign nodule or scar tissue. What...
All the wrong symptoms...
I was diagnosed in October 2020 with a Pancoast tumor in my right lung and it is my hope that this blog might help somebody recognize early symptoms...

RECENT POSTS

Multiple EGFR mutation lung cancer
Blue Sun, I'm glad your mom…
Last Comment by JanineT GRACE … on Aug 13, 2025 9:22 am
Multiple EGFR mutation lung cancer
Good news
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Multiple EGFR mutation lung cancer
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Tagrix vs tagrisso
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BVSEV - Ned's Chart of Treatment vs QOL

Article
In recent discussions, and in honor of our 15 year anniversary, some of our board members and staff came up with a list of their favorite patient education pieces. 

 

Our dear Ned was a stalwart supporter of GRACE, and had a huge part of us becoming the amazing community that we have been. 

We sadly lost Ned in 2011, but his humor, goodwill, and kindness lives on.  We at GRACE will always remember him as a founding member of our community.  

 

6 mm ground glass nodule

Discussion Topic
General Lung/Thoracic Cancer

Hello all! I am new to this forum, and although I have not been diagnosed with cancer, I did discover on a relatively recent CT scan that I have a 6mm lingular ground glass nodule. The CT scan (which I had done in December of 2021) was of my abdomen and pelvis to check for diverticulitis (which was negative), however, the ground glass nodule was incidentally found. I had had a prior CT scan of my abdomen and pelvis for suspected kidney stones almost two years prior, and no mention whatsoever was made of the ground glass nodule.

Live, Virtual and Free Targeted Therapies Forum July 2022

Discussion Topic
General NSCLC

In order to help prepare as many people as possible to be educated members of their own cancer care team, Grace is having its annual Targeted Therapies Forum live...online. In English on July 16, 2022, and in Spanish on July 30, 2022. Top oncologists in their field will meet online to discuss present standards of care and clinical trials. There will be large and small group discussions and Q and A.  Check in regularly as we get the schedule set. 

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

Worried I have pancoast tumor.

Discussion Topic
General Discussion!

Hello. I am here to see if anyone can share symptoms of pancoast. And if you can, please, answer some questions. My story: About a month-ish ago, I all of a sudden got this aching pain in my right shoulder blade. It was annoying, and bothersome. It would come and go, and a variety of pain levels, and woke me up at night. In the meantime before this, I felt something "Off" with my throat when I swallowed, like it felt as if "Something" was there. Then I would burp. Very unusual for me. So I have this "Off" feeling in my throat, and now this pain in my right shoulder blade.

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