(Old Thread request) My then 62 year old mother (never smoked or drank) was diagnosed with unresectable pancreatic adenocarcinoma nearly two years ago now. Given the fact that she is still alive, she has beaten the odds but of course we want more. Initially (Sept '12) she was prescribed gemcitabine/capecitabine to which she responded favorably (as indicated by her decreasing ca19-9 levels) and then underwent chemo-rad (with capecitabine) in Dec'12. By February '13 the tumour had shrunk to the point where surgery was attempted but unfortunately it had invaded the SMA and could not be removed. She resumed gem/cape in April '13 and continued until based on her bloodwork the decision was made in Dec' 13 to discontinue and switch to a second line, in this case, FOLFOX. For logistical reasons (stint, weather delays, etc...) she only started this treatment in March 2014 but her CA19-9 levels have been all over the map which leads me to wonder if the disease is becoming unstable. I had asked the Dr. about the possibility of REOLysin, LDN and AHCC but seeing as how none of them are part of the standard treatment regimen, he would not consider them at this time. He did suggest that he may be willing to persue REOLysin at such time that he had exhausted his other standard protocol options. Recently, I aquired my own supply of LDN (4.5 mg) and AHCC (500 mg) and Mom has been taking them for the past week or so. I am hoping that at least the LDN may increase her endorphin levels and that the AHCC may increase her dendritic cell count.
Thu, 04/17/2014 - 21:32#1